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Communication and Decision Making for Individuals with Inherited Cancer Syndromes (U01 Clinical Trial Optional)

This funding record is inactive. Please see the program website or contact the program sponsor to determine if this program is currently accepting applications or will open again in the future.

Catalog of Federal Domestic Assistance Number: 93.399
National Cancer Institute, National Institutes of Health, U.S. Department of Health and Human Services
Letter of Intent (Optional): Dec 20, 2019
Application: Jan 21, 2020

Scientific/research contact:
Wendy Nelson, PhD, MPH

Peer review contact:
Referral Officer

Financial and grants management contact:
Crystal Wolfrey


Communication and Decision Making for Individuals with Inherited Cancer Syndromes (U01 Clinical Trial Optional) provides grants for projects that develop, test, and evaluate interventions and implementation approaches, or adapt existing approaches, to improve cancer risk communication between patients with an inherited susceptibility to cancer and providers so that affected individuals can make informed clinical risk management decisions.

The program aims to foster and advance scientific efforts focused on:

  • Communication strategies for the return of an uninformative test result to a tested individual
  • Tailored communication strategies that address the unique needs of members of underserved populations, such as low income, uninsured, minority, rural, low literate, low numerate, and non-English speaking populations
  • Communication approaches for cancer risk disclosure to family members who may be at risk for cancer due to an inherited cancer syndrome
  • Technological, verbal, and written communication approaches related to genetic counseling and testing that promote understanding of genetic risk and help guide clinical management decisions for affected individuals
  • Decision-making tools and techniques that promote understanding of risk and informed risk management decisions for individuals at risk

Eligible applicants include:

  • Higher education institutions
    • Public/state controlled institutions
    • Private institutions
  • Nonprofit organizations
    • With 501(c)(3) status
    • Without 501(c)(3) status
    • Native American tribal organizations
    • Faith-based or community-based organizations
    • Regional organizations
  • Governments
    • State
    • County
    • City or township
    • Special districts
    • Federally recognized Indian/Native American tribal governments
    • Indian/Native American tribal governments (other than federally recognized)
    • Eligible agencies of the federal government
    • U.S. territory or possession
  • Other
    • Independent school districts
    • Public housing authorities
    • Indian housing authorities
    • Non-domestic entities and non-domestic components of U.S. entities
    • Small businesses
    • For-profit organizations
Geographic coverage
Amount of funding

Award ceiling: $600,000 per year
Project period: Up to 5 years
Estimated number of awards: 5
Estimated total program funding: $5,000,000

Application process

Links to the full announcement and online application process are available through

While not required, potential applicants are encouraged to email a letter of intent to Wendy Nelson, PhD, MPH at least 30 days prior to the application deadline. The earliest application submission date is December 20, 2019.

Tagged as
Cancer · Culture and cultural competency · Limited English proficient · Minorities · Poverty · Uninsured and underinsured

For complete information about funding programs, including your application status, please contact funders directly. Summaries are provided for your convenience only. RHIhub does not take part in application processes or monitor application status.