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Rural Health
Resources by Topic: Dementia

Utilization of Home- and Community-Based Services among Rural Family Caregivers of Persons with Dementia: The Role of the Area Deprivation Index
Examines the association between utilization of home- and community-based services and area-level factors as measured by the Area Deprivation Index, utilizing survey data of 361 rural family caregivers of people with dementia. Analyzes the relationship between home or community service use and level of area deprivation, U.S. region, and other individual factors.
Author(s): Jasmine Santoyo-Olsson, Kenneth E. Covinsky, Jing Cheng, Dolores Gallagher Thompson, Veronica Yank
Citation: Frontiers in Public Health, 13, 1688161
Date: 10/2025
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Supporting Individuals With Cognitive Impairment and Family Members in Rural Communities: Protocol for a Mixed Methods Digital Health Study
Study protocol for the Northern Arizona Memory Study (NAZMS), which will support dementia risk identification and promote understanding of cognitive health needs and supports via surveys and interviews of Alzheimer's disease and related dementia (ADRD) caregiver and care-receiver dyads in rural Northern Arizona. Details study design and implementation, and highlights the importance of culturally-tailored, accessible, and practical ADRD care supports and interventions for rural and tribal families in Arizona.
Author(s): Eric S. Cerino, Megan C. McCoy, Margarita Martinez, et al.
Citation: JMIR Research Protocols, 14, e77958
Date: 10/2025
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Shifting Care Patterns: How Medicaid Policies Shape Family and Formal Care Use
Analyzes the impacts of Medicaid 1915(c) waivers on likelihood of receiving formal versus family care among adults aged 70 years and older with functional limitations, utilizing 2011-2019 National Health and Aging Trends Study (NHATS) data. Highlights the significance of waiver payments for family caregiving for population subgroups including Medicaid beneficiaries, rural residents, and people living with dementia.
Author(s): Johanna Thunell, Elise M. Parrish, Katherine E.M. Miller
Citation: Alzheimer's & Dementia, 21(9), e70715
Date: 09/2025
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The National Dementia Workforce Study: The Plan for Organization Sample Frames and Data Collection
Details a plan for sampling and recruitment procedures of the dementia workforce, focusing on previously unsampled populations working in assisted living communities or home health agencies. Discusses sampling and recruitment strategies with considerations for Census region and rural areas.
Author(s): James Wagner, Laura M. Wagner, Sheryl Zimmerman, et al.
Citation: Journal of the American Geriatrics Society
Date: 09/2025
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The National Dementia Workforce Study: Methods for Surveying Community Clinicians Who Provide Care to People With Dementia
Discusses the design and significance of the National Dementia Workforce Study (NDWS) Community Clinician Survey, which surveys community-based providers of clinical care for people with dementia. Highlights survey methodology related to provider demographics, processes of care, geographic distribution, and more.
Author(s): Elizabeth M. White, James Wagner, Kate Stewart, et al.
Citation: Journal of the American Geriatrics Society
Date: 08/2025
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Mental and Physical Health of US Rural/Urban Caregivers of Persons With Dementia
Presents a study on the physical and mental health of caregivers of people with dementia in rural and urban areas. Highlights access challenges for both physical and mental health in rural areas and compares rates of mental and physical issues among rural and urban caregivers.
Author(s): Phoebe Tran, Fei Wang, E-Shien Chang
Citation: PLOS ONE, 20(8), e0329260
Date: 08/2025
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Aroostook Agency on Aging's Specialized Support for Dementia Caregivers and Care Recipients via Health Care Partnership
Case study highlighting a partnership between an Area Agency on Aging in Maine and a local hospital to provide dementia assessments and support services for local residents with dementia and their caregivers.
Date: 07/2025
Sponsoring organization: USAging
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Lifespan Exposures to Rural-Urban Conditions and Later-Life Cognitive Function
Examines associations between rural or urban residence during childhood and adulthood and cognitive outcomes, including mild cognitive impairment and dementia, among older adults, utilizing 2016 Harmonized Cognitive Assessment Protocol (HCAP) data of 3496 individuals aged 65 years or older.
Author(s): Lingzhi Chu, Yingyan Wu, Heidi Karjalainen, Olivia E Atherton
Citation: Alzheimer's & Dementia, 21(6), e70267
Date: 06/2025
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Mapping Disparities in Access to Lecanemab in Georgia
Analyzes access to Alzheimer's disease (AD) treatments in Georgia. Analyzes location of and drive times to lecanemab infusion sites and amyloid positron emission tomography (PET) scan facilities across the state. Discusses issues of access in rural counties.
Author(s): Niying Li, Samruddhi Nandkumar Borate, Kai Zhang, et al.
Citation: Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 21(4)
Date: 04/2025
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Wandering Elder & Alzheimer's Toolkit: Creating a Tribal Elder Safety Net to Address Wandering Persons
Provides guidelines, tools, and strategies supporting community responses to wandering incidents among tribal elders with Alzheimer's disease and related dementias. Discusses cultural, clinical, and community factors influencing ADRD prevalence and treatment, wandering behavior, and community response in tribal nations and communities.
Date: 03/2025
Sponsoring organization: International Association for Indigenous Aging
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