The Congenital Heart Initiative: Redefining Outcomes and Navigation to Adult-Centered Care (CHI-RON) Study
Link
Description
Reports on clinical and demographic gaps in adult congenital heart disease (CHD) care and the impact of care gaps on patient outcomes via a CHD surveillance system using patient-reported outcome, electronic health record, and administrative claims data. Includes data on mortality risk by level of rurality, among other factors.
Author(s)
Anitha John, Lindsey Rudov, Rittal Mehta, et al.
Date
2026
Organization
Patient-Centered Outcomes Research Institute
Tagged as
Cardiovascular disease
· Mortality
· Rural-urban differences
· Statistics and data