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Rural Hospice and Palliative Care Resources

Selected recent or important resources focusing on Rural Hospice and Palliative Care.

Rural-Urban Variations in Medicare Live Discharge Patterns from Hospice, 2012-2013
Details a study on the instances of live discharges from the Medicare hospice program from 2012-2013. Compares rural and urban discharge rates, as well as for-profit and nonprofit business models.
Author(s): Rachel Dolin, Denise Kirk, Mark Holmes
Date: 09/2017
Type: Document
Sponsoring organization: North Carolina Rural Health Research Program
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Challenges of Rural Cancer Care in the United States
Highlights the impact of rurality affecting the care of rural cancer patients and healthcare providers treating cancer patients. Topics discussed include the availability of cancer specialists, limited transportation services, lower socioeconomic status, health insurance coverage, less access to clinic trials, and the shortage of palliative and end-of-life staff and services.
Author(s): Mary Charlton, Jennifer Schlichting, Catherine Chioreso, et al.
Location: Oncology Journal, Practice & Policy, 29(9), 633-640
Date: 09/2015
Type: Document
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Perspectives of Rural Hospice Directors
Presents findings from interviews of rural hospice directors in 47 states. Identifies six primary issues including workforce, finance and reimbursement, regulations, technology, general rural issues, and relationships with other providers.
Author(s): Brad Gibbens, Shawnda Schroeder, Alana Knudson, Gary Hart
Date: 03/2015
Type: Document
Sponsoring organization: Rural Health Reform Policy Research Center
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Quality of Hospice Care: Comparison Between Rural and Urban Residents
Examines perceptions of hospice care by 331 rural and 412 urban hospice patients or family members in the Southeastern United States, from September 2009 through April 2010. Features statistics with breakdowns by rural or urban location, patient race, and cancer or non-cancer diagnosis.
Author(s): Marianne Baernholdt, Cathy L. Campbell, Ivora D. Hinton, Guofen Yan, Erica Lewis
Location: Journal of Nursing Care Quality, 30(3), 247-253
Date: 2015
Type: Document
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Hospice Workforce: An Annotated Review of the Literature
Contains an annotated review of hospice workforce literature published between 2000 and 2013. Review was completed to assist in identifying hospice provider types for a hospice workforce study by the Rural Health Reform Policy Research Center.
Author(s): Shawnda Schroeder
Date: 11/2013
Type: Document
Sponsoring organization: Rural Health Reform Policy Research Center
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Rural Hospice in the United States: A Review of the Literature
Explores the current environment of rural hospice care in the United States, provides a discussion of the current structure of hospice services, and serves as a formal review of current (2000-2013) rural research on the topic.
Author(s): Shawnda Schroeder
Date: 10/2013
Type: Document
Sponsoring organization: Rural Health Reform Policy Research Center
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Rural Hospice in the United States: An Annotated Review of the Literature
Contains an annotated review of hospice literature published between 2000 and 2013, focusing specifically on resources that address rural hospice care, access, and utilization. Includes an overview of hospice organizations and agencies cited most frequently in the literature, along with a discussion of their most recent research.
Author(s): Shawnda Schroeder
Date: 10/2013
Type: Document
Sponsoring organization: Rural Health Reform Policy Research Center
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Rural Implications of Changes to the Medicare Hospice Benefit
This policy brief highlights an April 2013 meeting in Grand Junction, Colorado, of the National Advisory Committee on Rural Health and Human Services. Presents the committee's recommendations and analyses of ACA provisions which may have rural implications regarding challenges and innovations in hospice and palliative care in rural and frontier areas.
Date: 08/2013
Type: Document
Sponsoring organization: National Advisory Committee on Rural Health and Human Services
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Palliative Care Rural Initiative Dissemination Model and Implementation Guide
Includes tools, best practices, and lessons learned associated with implementing care coordination models to help rural community hospice organizations meet the needs of veterans. Created within a collaboration of the National Rural Health Resource Center and the Veterans Integrated Service Network (VISN) 23 and designed to be replicated by other VISNs.
Date: 11/2012
Type: Document
Sponsoring organization: National Rural Health Resource Center
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Minnesota Rural Palliative Care Initiative: Final Report
Describes the Minnesota Rural Palliative Care Initiative (MRPCI), which assisted ten communities establish or strengthen palliative care services in rural Minnesota.
Author(s): Janelle Shearer, Karla Weng, Lyn Ceronsky, et al.
Date: 06/2011
Type: Document
Sponsoring organization: Stratis Health
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Hospice in Rural America
Presents an audio recording of a February 3, 2011 webinar on hospice in rural America.
Author(s): Christy Whitney
Date: 02/2011
Type: Audio
Sponsoring organization: Hospice Foundation of America
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National Rural Health Association Technical Assistance Project Final Report: Rural Palliative Care Pilot Project
Discusses a pilot project involving three rural communities in Franklin, NC; Ruleville, MS; and Valley City, ND. The project involved identifying resources, needs, and opportunities in these communities for palliative care processes.
Author(s): Karla Weng, Jennifer Lundblad, Lyn Ceronsky
Date: 09/2009
Type: Document
Sponsoring organization: Stratis Health
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Hospice Regulations and Notices
Lists federal regulations and notices related to Medicare hospice payment, including information on annual payment rate updates. Contains copies of proposed and final rules, along with any relevant corrections, as published in the Federal Register.
Type: Website
Sponsoring organization: Centers for Medicare and Medicaid Services
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Hospice Compare
Provides information on quality of care provided by Medicare-certified hospice agencies, using data related to patient preferences and effectiveness in managing pain and treating symptoms.
Type: Website
Sponsoring organization: U.S. Department of Health and Human Services
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Measures for Rural Palliative Care Programs
Audio recording of a webinar presented on September 18, 2014, giving results of a study examining quality measures that show clinical quality, cost and efficiency, and the patient and family experience of rural palliative care programs.
Additional links: Presentation Slides
Type: Audio
Sponsoring organization: Stratis Health
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National Study of Long-Term Care Providers (NSLTCP)
Monitors trends in the major sectors of paid, regulated long-term care services providers. Includes data and reports related to residential care communities, adult day services centers, home health agencies, nursing homes, and hospices.
Type: Website
Sponsoring organization: National Center for Health Statistics
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PubMed Search: Rural Hospice and Palliative Care
Searches PubMed's collection of journal article citations on the topics of rural hospice and palliative care.
Type: Literature Search
Sponsoring organization: National Library of Medicine
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CMS Hospice Center
Provides information on regulations, enrollment and participation, billing and payments, and CMS Manuals relating to hospice services and benefits.
Type: Website
Sponsoring organization: Centers for Medicare and Medicaid Services
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Last Updated: 12/5/2017