Rural Hospice and Palliative Care – Resources
Selected recent or important resources focusing on Rural Hospice and Palliative Care.
Palliative Care and Caregiving in the Midwest, Metro and Nonmetro Geographies: Insights from HINTS 2024
Examines characteristics of palliative caregiving in the Midwest. Utilizes 2024 Health Information National Trends Survey (HINTS) data to provide metro versus nonmetro breakdowns on the health of caregivers, knowledge about and perspectives on palliative care, person being cared for, and more.
Author(s): Adee Athiyaman
Date: 07/2025
Sponsoring organization: Illinois Institute for Rural Affairs
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Examines characteristics of palliative caregiving in the Midwest. Utilizes 2024 Health Information National Trends Survey (HINTS) data to provide metro versus nonmetro breakdowns on the health of caregivers, knowledge about and perspectives on palliative care, person being cared for, and more.
Author(s): Adee Athiyaman
Date: 07/2025
Sponsoring organization: Illinois Institute for Rural Affairs
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Establishing First Age-Friendly Health System Tele-Palliative Care Clinic – Facilitators, Challenges, Lessons Learned to Improve Care for Rural, Older Veterans
Presents a study exploring an age-friendly tele-palliative care clinic for older veterans. Highlights challenges and successes of using telehealth to provide palliative care to older rural veterans in Colorado.
Author(s): Stephanie Hartz, Alexander Garbin, Kathryn Allen Nearing, et al.
Citation: INQUIRY: The Journal of Health Care Organization, Provision, and Financing, 62
Date: 07/2025
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Presents a study exploring an age-friendly tele-palliative care clinic for older veterans. Highlights challenges and successes of using telehealth to provide palliative care to older rural veterans in Colorado.
Author(s): Stephanie Hartz, Alexander Garbin, Kathryn Allen Nearing, et al.
Citation: INQUIRY: The Journal of Health Care Organization, Provision, and Financing, 62
Date: 07/2025
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Study Protocol of Sustaining Home Palliative Care for Patients with Heart Failure (Hf) and Their Family Caregivers in Rural Appalachia: A Mixed Methods Randomized Clinical Trial
Study protocol to examine an integrated nurse-led intervention bundle for patients with heart failure and their family caregivers regarding home supportive end-of-live palliative care in rural West Virginia. Discusses the assessment of the intervention's sustainability with rural stakeholders, visiting volunteers, and the West Virginia Faith Community Nurse Network.
Author(s): Ubolrat Piamjariyakul, Stephanie Young, Angel Smothers, et al.
Citation: BMC Palliative Care, 24(1)
Date: 03/2025
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Study protocol to examine an integrated nurse-led intervention bundle for patients with heart failure and their family caregivers regarding home supportive end-of-live palliative care in rural West Virginia. Discusses the assessment of the intervention's sustainability with rural stakeholders, visiting volunteers, and the West Virginia Faith Community Nurse Network.
Author(s): Ubolrat Piamjariyakul, Stephanie Young, Angel Smothers, et al.
Citation: BMC Palliative Care, 24(1)
Date: 03/2025
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MedPAC Report to the Congress: Medicare Payment Policy: Hospice Services: Chapter 9
Discusses payment adequacy for hospice and palliative support services. Includes data on average costs by day and aggregate margins by urban and rural status, as well as demographics on Medicare decedents who used hospice during 2010 and between 2019-2023. Compares the actual hospice utilization rates in micropolitan, rural adjacent, rural nonadjacent, and frontier areas to urban hospice utilization rates.
Date: 03/2025
Sponsoring organization: Medicare Payment Advisory Commission
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Discusses payment adequacy for hospice and palliative support services. Includes data on average costs by day and aggregate margins by urban and rural status, as well as demographics on Medicare decedents who used hospice during 2010 and between 2019-2023. Compares the actual hospice utilization rates in micropolitan, rural adjacent, rural nonadjacent, and frontier areas to urban hospice utilization rates.
Date: 03/2025
Sponsoring organization: Medicare Payment Advisory Commission
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Rural American Hospice Insights Report: Understanding the Needs of the Rural Family Caregiver
Presents findings from a survey of 400 rural family caregivers regarding their knowledge and perceptions of hospice care. Covers respondents' demographics, communication and learning preferences, awareness of and beliefs about hospice, priorities regarding hospice care, and more. Requires name, organization information, and email address to download.
Date: 12/2024
Sponsoring organizations: National Alliance for Care at Home, Transcend Strategy Group
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Presents findings from a survey of 400 rural family caregivers regarding their knowledge and perceptions of hospice care. Covers respondents' demographics, communication and learning preferences, awareness of and beliefs about hospice, priorities regarding hospice care, and more. Requires name, organization information, and email address to download.
Date: 12/2024
Sponsoring organizations: National Alliance for Care at Home, Transcend Strategy Group
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Transitional Palliative Care for Family Caregivers: Outcomes From a Randomized Controlled Trial
Examines the influence of mentoring from a palliative care nurse on family caregivers in rural and other areas of three states. Analyzes adult caregivers from 2018-2022 after their care recipient who utilized inpatient palliative care was discharged from the hospital. Compares a control group who received only monthly phone calls with an intervention group who received teaching, guidance, and counseling. Discusses importance of both caregiver support and patient wellness.
Author(s): Joan M. Griffin, Jay N. Mandrekar, Catherine E. Vanderboom, et al.
Citation: Journal of Pain and Symptom Management, 68(5), 456-466
Date: 11/2024
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Examines the influence of mentoring from a palliative care nurse on family caregivers in rural and other areas of three states. Analyzes adult caregivers from 2018-2022 after their care recipient who utilized inpatient palliative care was discharged from the hospital. Compares a control group who received only monthly phone calls with an intervention group who received teaching, guidance, and counseling. Discusses importance of both caregiver support and patient wellness.
Author(s): Joan M. Griffin, Jay N. Mandrekar, Catherine E. Vanderboom, et al.
Citation: Journal of Pain and Symptom Management, 68(5), 456-466
Date: 11/2024
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Medicare Payment Basics: Hospice Services Payment System
Overview of the Medicare hospice benefit and Medicare payments to hospice providers. Describes the four levels of care of the hospice prospective payment system and payment rates.
Date: 10/2024
Sponsoring organization: Medicare Payment Advisory Commission
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Overview of the Medicare hospice benefit and Medicare payments to hospice providers. Describes the four levels of care of the hospice prospective payment system and payment rates.
Date: 10/2024
Sponsoring organization: Medicare Payment Advisory Commission
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NHPCO Facts and Figures: 2024 Edition
Provides an overview of hospice and palliative care in the United States. Includes information and data on patient characteristics, access to care, reimbursement, barriers and facilitators to care, quality of care, and more. Includes data on geographic locations of hospice services and patients.
Date: 09/2024
Sponsoring organizations: National Alliance for Care at Home, National Hospice and Palliative Care Organization
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Provides an overview of hospice and palliative care in the United States. Includes information and data on patient characteristics, access to care, reimbursement, barriers and facilitators to care, quality of care, and more. Includes data on geographic locations of hospice services and patients.
Date: 09/2024
Sponsoring organizations: National Alliance for Care at Home, National Hospice and Palliative Care Organization
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Palliative Care in Rural Communities
Presents the CARE (Complex, Access, Resourceful, Extraordinary) Framework to highlight the challenges and benefits of healthcare delivery in rural communities. Highlights multiple models for palliative care outside acute care settings with consideration for the CARE Framework.
Author(s): Tracy Fasolino, Kathleen Valentine, Megan E. Mayfield, William E. Rosa, Anne Koci
Citation: American Journal of Nursing, 128(4), 50-55
Date: 07/2024
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Presents the CARE (Complex, Access, Resourceful, Extraordinary) Framework to highlight the challenges and benefits of healthcare delivery in rural communities. Highlights multiple models for palliative care outside acute care settings with consideration for the CARE Framework.
Author(s): Tracy Fasolino, Kathleen Valentine, Megan E. Mayfield, William E. Rosa, Anne Koci
Citation: American Journal of Nursing, 128(4), 50-55
Date: 07/2024
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Standing Technical Expert Panel for the Development, Evaluation, and Maintenance of Post-Acute Care (PAC) and Hospice Quality Reporting Program (QRP) Measurement Sets: Summary Report
Describes a December 15, 2023, Technical Expert Panel (TEP) regarding the development of additional cross-setting measures for the Post-Acute Care (PAC) and Hospice Quality Reporting Programs (QRPs), and filling measurement gaps with the Centers for Medicare & Medicaid Services (CMS) Universal Foundation measures. Summarizes TEP comments on adding measures to PAC and Hospice QRPs in four domains: 1) behavioral and mental health, 2) patient experience of care, 3) pain management, and 4) immunization. Covers panelists' discussions on the appropriateness of the existing measure set and potential new measures, setting-specific considerations, data sources, and other topics related to each domain. Includes rural references throughout.
Date: 07/2024
Sponsoring organizations: Abt Associates, Acumen, Centers for Medicare and Medicaid Services
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Describes a December 15, 2023, Technical Expert Panel (TEP) regarding the development of additional cross-setting measures for the Post-Acute Care (PAC) and Hospice Quality Reporting Programs (QRPs), and filling measurement gaps with the Centers for Medicare & Medicaid Services (CMS) Universal Foundation measures. Summarizes TEP comments on adding measures to PAC and Hospice QRPs in four domains: 1) behavioral and mental health, 2) patient experience of care, 3) pain management, and 4) immunization. Covers panelists' discussions on the appropriateness of the existing measure set and potential new measures, setting-specific considerations, data sources, and other topics related to each domain. Includes rural references throughout.
Date: 07/2024
Sponsoring organizations: Abt Associates, Acumen, Centers for Medicare and Medicaid Services
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Last Updated: 10/14/2025