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Rural Health Information Hub

Rural Health
Resources by Topic: Hospice and palliative care

Guidance for the Expiration of the COVID-19 Public Health Emergency (PHE)
Outlines the emergency waivers related to the minimum health and safety requirements for long-term care and acute continuing care providers that expired at the end of the COVID-19 public health emergency (PHE). Describes the timelines for certain regulatory requirements issued during the PHE through interim final rules.
Date: 07/2025
Sponsoring organization: Centers for Medicare and Medicaid Services
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Study Protocol of Sustaining Home Palliative Care for Patients with Heart Failure (Hf) and Their Family Caregivers in Rural Appalachia: A Mixed Methods Randomized Clinical Trial
Study protocol to examine an integrated nurse-led intervention bundle for patients with heart failure and their family caregivers regarding home supportive end-of-live palliative care in rural West Virginia. Discusses the assessment of the intervention's sustainability with rural stakeholders, visiting volunteers, and the West Virginia Faith Community Nurse Network.
Author(s): Ubolrat Piamjariyakul, Stephanie Young, Angel Smothers, et al.
Citation: BMC Palliative Care, 24(1)
Date: 03/2025
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MedPAC Report to the Congress: Medicare Payment Policy: Hospice Services: Chapter 9
Discusses payment adequacy for hospice and palliative support services. Includes data on average costs by day and aggregate margins by urban and rural status, as well as demographics on Medicare decedents who used hospice during 2010 and between 2019-2023. Compares the actual hospice utilization rates in micropolitan, rural adjacent, rural nonadjacent, and frontier areas to urban hospice utilization rates.
Date: 03/2025
Sponsoring organization: Medicare Payment Advisory Commission
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MedPAC Report to the Congress: Medicare Payment Policy, 2025
Annual review of Medicare payment policies, with recommendations to Congress. Includes discussion on Medicare payment policies directly affecting rural providers and beneficiaries. Addresses payment adequacy for Medicare fee-for-service payment systems, Medicare Advantage (MA), and Medicare Part D.
Date: 03/2025
Sponsoring organization: Medicare Payment Advisory Commission
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Exploring Access to Critical Health Services for Older Adults in Rural America from 1990 to 2020
Analyzes Area Health Resource Files to evaluate access to healthcare facilities and services between 1990 and 2020 using Rural-Urban Continuum Codes (RUCC). Discusses healthcare access disparities between urban and rural areas and the growth of the older adult population in rural communities.
Author(s): Elizabeth A. Bambury, Alexis A. Merdjanoff, Joshua T. Fergen, J. Tom Mueller
Citation: The Journal of Rural Health, 41(1), e70004
Date: 02/2025
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2024-2025 Pre-Rulemaking Measure Review (PRMR): Recommendations Report
Reviews the 41 pre-rulemaking quality measures the Battelle's Partnership for Quality Measurement (PQM) considered during the 2024-2025 Pre-Rulemaking Measure Review (PRMR) cycle. Discusses measures for clinician, hospital, and post-acute care/long-term care programs. Includes rural references and considerations throughout.
Date: 02/2025
Sponsoring organization: Partnership for Quality Measurement
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January 2025 MedPAC Meeting Transcript
Transcript from the Medicare Payment Advisory Commission's (MedPAC) January 2025 meeting. Covers payment adequacy and updates for physician and other health professional services, hospital inpatient and outpatient services, skilled nursing facility services, home health agency services, inpatient rehabilitation facility services, outpatient dialysis services, and hospice services. Discusses status reports on Medicare Part D, ambulatory surgical centers, and the Medicare Advantage program, as well as policy options for modifying the cost-sharing liability for beneficiaries who receive care at Critical Access Hospitals. Includes rural references and considerations throughout.
Additional links: Reducing Beneficiary Cost-sharing for Outpatient Services at Critical Access Hospitals
Date: 01/2025
Sponsoring organization: Medicare Payment Advisory Commission
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Rural American Hospice Insights Report: Understanding the Needs of the Rural Family Caregiver
Presents findings from a survey of 400 rural family caregivers regarding their knowledge and perceptions of hospice care. Covers respondents' demographics, communication and learning preferences, awareness of and beliefs about hospice, priorities regarding hospice care, and more. Requires name, organization information, and email address to download.
Date: 12/2024
Sponsoring organizations: National Alliance for Care at Home, Transcend Strategy Group
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December 2024 MedPAC Meeting Transcript
Transcript from the Medicare Payment Advisory Commission's (MedPAC) December 2024 meeting. Covers payment adequacy and updates for physician and other health professional services, hospital inpatient and outpatient services, Rural Emergency Hospitals (REHs), skilled nursing facility services, inpatient rehabilitation facility services, home health services, hospice services, and outpatient dialysis services.
Additional links: Assessing Payment Adequacy and Updating Payments: Hospital Inpatient and Outpatient Services; and Mandated Report on Rural Emergency Hospitals - Presentation Slides, Assessing Payment Adequacy and Updating Payments: Skilled Nursing Facility Services - Presentation Slides
Date: 12/2024
Sponsoring organization: Medicare Payment Advisory Commission
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Transitional Palliative Care for Family Caregivers: Outcomes From a Randomized Controlled Trial
Examines the influence of mentoring from a palliative care nurse on family caregivers in rural and other areas of three states. Analyzes adult caregivers from 2018-2022 after their care recipient who utilized inpatient palliative care was discharged from the hospital. Compares a control group who received only monthly phone calls with an intervention group who received teaching, guidance, and counseling. Discusses importance of both caregiver support and patient wellness.
Author(s): Joan M. Griffin, Jay N. Mandrekar, Catherine E. Vanderboom, et al.
Citation: Journal of Pain and Symptom Management, 68(5), 456-466
Date: 11/2024
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