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Rural Health
Resources by Topic: Hospice and palliative care

January 2025 MedPAC Meeting Transcript
Transcript from the Medicare Payment Advisory Commission's (MedPAC) January 2025 meeting. Covers payment adequacy and updates for physician and other health professional services, hospital inpatient and outpatient services, skilled nursing facility services, home health agency services, inpatient rehabilitation facility services, outpatient dialysis services, and hospice services. Discusses status reports on Medicare Part D, ambulatory surgical centers, and the Medicare Advantage program, as well as policy options for modifying the cost-sharing liability for beneficiaries who receive care at Critical Access Hospitals. Includes rural references and considerations throughout.
Additional links: Reducing Beneficiary Cost-sharing for Outpatient Services at Critical Access Hospitals
Date: 01/2025
Sponsoring organization: Medicare Payment Advisory Commission
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Rural American Hospice Insights Report: Understanding the Needs of the Rural Family Caregiver
Presents findings from a survey of 400 rural family caregivers regarding their knowledge and perceptions of hospice care. Covers respondents' demographics, communication and learning preferences, awareness of and beliefs about hospice, priorities regarding hospice care, and more. Requires name, organization information, and email address to download.
Date: 12/2024
Sponsoring organizations: National Alliance for Care at Home, Transcend Strategy Group
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December 2024 MedPAC Meeting Transcript
Transcript from the Medicare Payment Advisory Commission's (MedPAC) December 2024 meeting. Covers payment adequacy and updates for physician and other health professional services, hospital inpatient and outpatient services, Rural Emergency Hospitals (REHs), skilled nursing facility services, inpatient rehabilitation facility services, home health services, hospice services, and outpatient dialysis services.
Additional links: Assessing Payment Adequacy and Updating Payments: Hospital Inpatient and Outpatient Services; and Mandated Report on Rural Emergency Hospitals - Presentation Slides, Assessing Payment Adequacy and Updating Payments: Skilled Nursing Facility Services - Presentation Slides
Date: 12/2024
Sponsoring organization: Medicare Payment Advisory Commission
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Transitional Palliative Care for Family Caregivers: Outcomes From a Randomized Controlled Trial
Examines the influence of mentoring from a palliative care nurse on family caregivers in rural and other areas of three states. Analyzes adult caregivers from 2018-2022 after their care recipient who utilized inpatient palliative care was discharged from the hospital. Compares a control group who received only monthly phone calls with an intervention group who received teaching, guidance, and counseling. Discusses importance of both caregiver support and patient wellness.
Author(s): Joan M. Griffin, Jay N. Mandrekar, Catherine E. Vanderboom, et al.
Citation: Journal of Pain and Symptom Management, 68(5), 456-466
Date: 11/2024
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NHPCO Facts and Figures: 2024 Edition
Provides an overview of hospice and palliative care in the United States. Includes information and data on patient characteristics, access to care, reimbursement, barriers and facilitators to care, quality of care, and more. Includes data on geographic locations of hospice services and patients.
Date: 09/2024
Sponsoring organizations: National Alliance for Care at Home, National Hospice and Palliative Care Organization
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Palliative Care for Patients with Heart Failure and Family Caregivers in Rural Appalachia: A Randomized Controlled Trial
Evaluates FamPALcare, a telephone coaching intervention for family caregivers who provide palliative care to patients with heart failure (HF) in rural Appalachia. Provides data on patients' HF-related physical health and depression/anxiety, caregivers' caregiving burden and depression/anxiety, and intervention helpfulness at 3 and 6 months.
Author(s): Ubolrat Piamjariyakul, Angel Smothers, Kesheng Wang, et al.
Citation: BMC Palliative Care, 23, 199
Date: 08/2024
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Palliative Care in Rural Communities
Presents the CARE (Complex, Access, Resourceful, Extraordinary) Framework to highlight the challenges and benefits of healthcare delivery in rural communities. Highlights multiple models for palliative care outside acute care settings with consideration for the CARE Framework.
Author(s): Tracy Fasolino, Kathleen Valentine, Megan E. Mayfield, William E. Rosa, Anne Koci
Citation: American Journal of Nursing, 128(4), 50-55
Date: 07/2024
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Standing Technical Expert Panel for the Development, Evaluation, and Maintenance of Post-Acute Care (PAC) and Hospice Quality Reporting Program (QRP) Measurement Sets: Summary Report
Describes a December 15, 2023, Technical Expert Panel (TEP) regarding the development of additional cross-setting measures for the Post-Acute Care (PAC) and Hospice Quality Reporting Programs (QRPs), and filling measurement gaps with the Centers for Medicare & Medicaid Services (CMS) Universal Foundation measures. Summarizes TEP comments on adding measures to PAC and Hospice QRPs in four domains: 1) behavioral and mental health, 2) patient experience of care, 3) pain management, and 4) immunization. Covers panelists' discussions on the appropriateness of the existing measure set and potential new measures, setting-specific considerations, data sources, and other topics related to each domain. Includes rural references throughout.
Date: 07/2024
Sponsoring organizations: Abt Associates, Acumen, Centers for Medicare and Medicaid Services
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Caregiver Recruitment Strategies for Interventions Designed to Optimize Transitions from Hospital to Home: Lessons from a Randomized Trial
Compares in-person and virtual recruitment strategies for a video-based intervention for family caregivers (FCGs) to improve transitional palliative care for critically ill patients in rural Minnesota, Wisconsin, and Iowa. Includes data on effectiveness of each strategy and diversity of recruited FCGs.
Author(s): Allison M. Gustavson, Molly J. Horstman, et al.
Citation: Trials, 25, 454
Date: 07/2024
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Healthcare Use and Out-of-Pocket Costs for Rural Family Caregivers and Care Recipients in a Randomized Controlled Trial
Evaluates the effect of a transitional palliative care intervention on healthcare utilization and out-of-pocket spending for 282 groups of rural family caregivers and their care recipients in Minnesota, Wisconsin, and Iowa.
Author(s): Brystana G. Kaufman, Ro W. Huang, Diane E. Holland, et al.
Citation: Journal of the American Geriatric Society, 72(8), 2523-2531
Date: 05/2024
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