Rural Health
Resources by Topic: Hospice and palliative care
Impact of Concurrent Hospice Care on Primary Care Visits among Children in Southern Rural Appalachia
Explores the relationship between concurrent hospice care and primary care visits among children in southern rural Appalachia between 2011 and 2013. Describes demographic and clinical characteristics of children in hospice care in this study. Discusses the findings in relation to the children's residence in medically underresourced areas.
Author(s): Mary Lou Clark Fornehed, Radion Svynarenko, Lisa C. Lindley
Citation: Journal of Pediatric Health care, 36(5), 438-442
Date: 09/2022
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Explores the relationship between concurrent hospice care and primary care visits among children in southern rural Appalachia between 2011 and 2013. Describes demographic and clinical characteristics of children in hospice care in this study. Discusses the findings in relation to the children's residence in medically underresourced areas.
Author(s): Mary Lou Clark Fornehed, Radion Svynarenko, Lisa C. Lindley
Citation: Journal of Pediatric Health care, 36(5), 438-442
Date: 09/2022
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Rural-Urban Disparities in Place of Death in Hematologic Malignancies in the United States, 2003 to 2019
Examines place of death (POD) by home, hospice, or nursing/medical facility due to hematologic malignancy mortalities that occurred between 2013 and 2019. Analyzes 1,009,717 deaths recorded in the Centers for Disease Control and Prevention Wide-ranging Online Data for Epidemiologic Research (CDC WONDER) database and breaks down POD by large metropolitan, medium/small metropolitan, and rural metropolitan. Discusses disparities in urban and rural community access to end-of-life resources.
Author(s): S. M. Qasim Hussaini, Amanda L. Blackford, Arjun Gupta, et al.
Citation: Blood Advances, 6(16), 4731-4734
Date: 08/2022
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Examines place of death (POD) by home, hospice, or nursing/medical facility due to hematologic malignancy mortalities that occurred between 2013 and 2019. Analyzes 1,009,717 deaths recorded in the Centers for Disease Control and Prevention Wide-ranging Online Data for Epidemiologic Research (CDC WONDER) database and breaks down POD by large metropolitan, medium/small metropolitan, and rural metropolitan. Discusses disparities in urban and rural community access to end-of-life resources.
Author(s): S. M. Qasim Hussaini, Amanda L. Blackford, Arjun Gupta, et al.
Citation: Blood Advances, 6(16), 4731-4734
Date: 08/2022
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Hospice Care Index Technical Report
Provides an overview of the Hospice Care Index (HCI), a new Hospice Quality Reporting Program (HQRP) quality measure. Presents data and descriptive trends for the overall index score and each of the ten claims-based indicators that make up the HCI using Medicare claims data from fiscal years 2019-2021. Includes comparisons of hospices by the number of claims, decade of certification, ownership, facility type, region, and urban/rural location.
Date: 07/2022
Sponsoring organizations: Abt Associates, Centers for Medicare and Medicaid Services
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Provides an overview of the Hospice Care Index (HCI), a new Hospice Quality Reporting Program (HQRP) quality measure. Presents data and descriptive trends for the overall index score and each of the ten claims-based indicators that make up the HCI using Medicare claims data from fiscal years 2019-2021. Includes comparisons of hospices by the number of claims, decade of certification, ownership, facility type, region, and urban/rural location.
Date: 07/2022
Sponsoring organizations: Abt Associates, Centers for Medicare and Medicaid Services
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Staving Off One's Mortality: Rural Kidney Health and Its Disparities
Describes rural disparities around access to disease-stabilizing treatment for kidney disease and to renal replacement therapies. Features insights from providers serving rural patients, as well as a rural kidney transplant recipient sharing her experience.
Author(s): Kay Miller Temple
Citation: Rural Monitor
Date: 06/2022
Sponsoring organization: Rural Health Information Hub
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Describes rural disparities around access to disease-stabilizing treatment for kidney disease and to renal replacement therapies. Features insights from providers serving rural patients, as well as a rural kidney transplant recipient sharing her experience.
Author(s): Kay Miller Temple
Citation: Rural Monitor
Date: 06/2022
Sponsoring organization: Rural Health Information Hub
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Palliative Care — More Than Just Hospice, with Karla Weng and Pat Justis
An episode of the Exploring Rural Health podcast featuring Karla Weng, Senior Program Manager for Stratis Health, and Pat Justis, Director of the Washington State Office of Rural Health. Discusses rural palliative care and an initiative to expand access in rural communities in Washington State, North Dakota, and Wisconsin.
Date: 06/2022
Sponsoring organization: Rural Health Information Hub
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An episode of the Exploring Rural Health podcast featuring Karla Weng, Senior Program Manager for Stratis Health, and Pat Justis, Director of the Washington State Office of Rural Health. Discusses rural palliative care and an initiative to expand access in rural communities in Washington State, North Dakota, and Wisconsin.
Date: 06/2022
Sponsoring organization: Rural Health Information Hub
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Post-Acute and Long-term Care Providers and Services Users in the United States, 2017–2018
Describes the supply, organizational characteristics, staffing, and services offered by post-acute and long-term care providers. Provides descriptions of service users, including residents of nursing homes and residential care communities, patients receiving home health or hospice care, and people who attend adult day services centers. Features statistics including distribution of post-acute and long-term care providers in 2017-2018, with breakdowns by metropolitan, micropolitan, or other areas.
Author(s): Manisha Sengupta, Jessica Penn Lendon, Christine Caffrey, Amanuel Melekin, Priyanka Singh
Date: 05/2022
Sponsoring organization: National Center for Health Statistics
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Describes the supply, organizational characteristics, staffing, and services offered by post-acute and long-term care providers. Provides descriptions of service users, including residents of nursing homes and residential care communities, patients receiving home health or hospice care, and people who attend adult day services centers. Features statistics including distribution of post-acute and long-term care providers in 2017-2018, with breakdowns by metropolitan, micropolitan, or other areas.
Author(s): Manisha Sengupta, Jessica Penn Lendon, Christine Caffrey, Amanuel Melekin, Priyanka Singh
Date: 05/2022
Sponsoring organization: National Center for Health Statistics
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Developing Successful Palliative Care Teams in Rural Communities: A Facilitated Process
Discusses the importance of palliative care in rural areas. Describes a 3-year initiative led by Stratis Health to guide the development of palliative care services through rural community-based teams in North Dakota, Washington, and Wisconsin. Presents results of the initiative, including initial and follow-up assessments regarding the community's experience and expertise in components of palliative care.
Author(s): Karla Weng, Janelle Shearer, Laura Grangaard Johnson
Citation: Journal of Palliative Medicine, 25(5), 734–741
Date: 05/2022
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Discusses the importance of palliative care in rural areas. Describes a 3-year initiative led by Stratis Health to guide the development of palliative care services through rural community-based teams in North Dakota, Washington, and Wisconsin. Presents results of the initiative, including initial and follow-up assessments regarding the community's experience and expertise in components of palliative care.
Author(s): Karla Weng, Janelle Shearer, Laura Grangaard Johnson
Citation: Journal of Palliative Medicine, 25(5), 734–741
Date: 05/2022
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North Dakota Rural Community-Based Palliative Care Project: Participating Communities
Map of North Dakota identifying the communities participating in the Rural Community-Based Palliative Care Project. Highlights the frontier and non-frontier counties.
Date: 04/2022
Sponsoring organization: University of North Dakota Center for Rural Health
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Map of North Dakota identifying the communities participating in the Rural Community-Based Palliative Care Project. Highlights the frontier and non-frontier counties.
Date: 04/2022
Sponsoring organization: University of North Dakota Center for Rural Health
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Evaluation of the Medicare Care Choices Model: Annual Report 4
Evaluates the Medicare Care Choice Model (MCCM), which tests whether offering eligible Medicare beneficiaries the option to receive supportive services without forgoing payment for treatment of their terminal conditions improved their quality of life and care, increased patient and family satisfaction, and reduced Medicare expenditures. Reports on MCCM beneficiary outcomes through March 2021. Includes information on rural beneficiary participation in the model and compares rural and urban beneficiary outcomes.
Additional links: Findings at a Glance
Date: 04/2022
Sponsoring organizations: Centers for Medicare and Medicaid Services, Mathematica
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Evaluates the Medicare Care Choice Model (MCCM), which tests whether offering eligible Medicare beneficiaries the option to receive supportive services without forgoing payment for treatment of their terminal conditions improved their quality of life and care, increased patient and family satisfaction, and reduced Medicare expenditures. Reports on MCCM beneficiary outcomes through March 2021. Includes information on rural beneficiary participation in the model and compares rural and urban beneficiary outcomes.
Additional links: Findings at a Glance
Date: 04/2022
Sponsoring organizations: Centers for Medicare and Medicaid Services, Mathematica
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"Hard to Say Goodbye Over iPad": Experiences of Palliative Care Providers and Lessons Learned During the COVID-19 Pandemic in Rural Communities of Indiana, United States
Explores healthcare professionals' perspectives about the challenges and barriers to providing palliative care in rural Indiana during the COVID-19 pandemic. Presents findings from interviews with 15 providers on restricted visitation, communication barriers, provider distress, and hospice services and referrals.
Author(s): Nasreen Lalani, Yun Cai, Yitong Wang
Citation: Journal of Hospice and Palliative Nursing, 24(3), E94-E100
Date: 03/2022
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Explores healthcare professionals' perspectives about the challenges and barriers to providing palliative care in rural Indiana during the COVID-19 pandemic. Presents findings from interviews with 15 providers on restricted visitation, communication barriers, provider distress, and hospice services and referrals.
Author(s): Nasreen Lalani, Yun Cai, Yitong Wang
Citation: Journal of Hospice and Palliative Nursing, 24(3), E94-E100
Date: 03/2022
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