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Rural Health
Resources by Topic: Hospice and palliative care

Aging in Appalachia
Episodes of the radio program "Inside Appalachia," exploring challenges faced by elderly people in Appalachia, and the resources available to them. Topics include caregiver shortages, Alzheimer's disease, dying with dignity, and isolation and loneliness.
Date: 2019
Type: Website
Sponsoring organization: West Virginia Public Broadcasting
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Advance Care Planning: Strategic for All Adults, Even the Healthy
Discusses the benefits of patients having proactive conversations about the care they might want to receive in situations where they are unable to speak for themselves. Shares insights from advance care planning (ACP) advocates and experts regarding ACP access in rural areas.
Author(s): Kay Miller Temple
Citation: Rural Monitor
Date: 11/2018
Type: Document
Sponsoring organization: Rural Health Information Hub
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Community-based Palliative Care: Scaling Access for Rural Populations
Explains the role palliative care plays in meeting the needs of patients with serious illness and chronic medical conditions. Discusses challenges to accessing palliative care in rural areas and highlights work in Alaska, California, and Kansas to help address this need.
Author(s): Kay Miller Temple
Citation: Rural Monitor
Date: 10/2018
Type: Document
Sponsoring organization: Rural Health Information Hub
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Palliative Care in California: Narrowing the Gap
Reports on a survey of palliative care programs in California. Includes interactive maps with county-level data on the need for and capacity of palliative care services.
Author(s): Kathleen Kerr
Date: 06/2018
Type: Document
Sponsoring organization: California Health Care Foundation
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Telehomecare Monitoring Services: Eastern Maine Healthcare Systems VNA Home Health Hospice
Discusses the development, impact, lessons learned, and future goals of a telehealth home health and hospice monitoring program for a healthcare system in rural Maine.
Date: 04/2018
Type: Document
Sponsoring organization: American Hospital Association
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MedPAC Report to the Congress: Medicare Payment Policy, 2018
Annual review of Medicare payment policies, with recommendations to Congress. Includes discussion on Medicare payment policies directly affecting rural providers and beneficiaries. Addresses Medicare Part D, Medicare Advantage, telehealth, payment incentive programs, and payment adequacy for healthcare facilities and services.
Additional links: Chapter 14 Online-Only Appendixes: The Medicare Prescription Drug Program (Part D): Status Report (March 2018 Report, Revised June 25, 2018), Chapter 16 Online-Only Appendixes: Mandated Report: Telehealth Services and the Medicare Program (March 2018 report), Errata Sheet: Table 9-7, Page 255 (March 2018 Report, Revised May 30, 2018)
Date: 03/2018
Type: Document
Sponsoring organization: Medicare Payment Advisory Commission
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Developing a "Toolkit" to Measure Implementation of Concurrent Palliative Care in Rural Community Cancer Centers
Reports on the implementation of an early palliative care telehealth model identified as ENABLE (Educate, Nurture, Advise, Before Life Ends) for patients with recently diagnosed cancer and their caregivers in 4 rural cancer centers. Describes the measures used to determine early palliative care implementation and their development and testing, and the challenges and lessons learned in the implementation process.
Author(s): Lisa Zubkoff, J. Nicholas Dionne-Odom, Maria Pisu, et al.
Citation: Palliative & Supportive Care, 16(1), 60-72
Date: 02/2018
Type: Document
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Models and Strategies to Integrate Palliative Care Principles into Care for People with Serious Illness: Proceedings of a Workshop
Summarizes presentations, discussions, and workshop participant suggestions for improving the quality of, expanding access to, and supporting policies for community-based palliative care. Provides examples of community-based palliative care models, including a model for reaching patients in rural underserved areas.
Additional links: Read Online, Workshop Highlights
Author(s): Roundtable on Quality Care for People with Serious Illness
Date: 2018
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Infrequent Provision of Palliative Care to Patients with Dialysis-Requiring AKI
Explores the use of palliative care among patients with acute kidney injury (AKI) who require dialysis. Examines data contained in the National Inpatient Sample (NIS) database from 44 states and over 4,000 hospitals. Compares palliative care use across different comorbidities, patient demographics, and hospital types, including urban and rural hospitals.
Author(s): Kelly Chong, Samuel A. Silver, Jin Long, et al.
Citation: Clinical Journal of the American Society of Nephrology, 12(11), 1744-1752
Date: 11/2017
Type: Document
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Rural-Urban Variations in Medicare Live Discharge Patterns from Hospice, 2012-2013
Details a study on the instances of live discharges from the Medicare hospice program from 2012-2013. Compares rural and urban discharge rates, as well as for-profit and nonprofit business models.
Author(s): Rachel Dolin, Denise Kirk, Mark Holmes
Date: 09/2017
Type: Document
Sponsoring organization: North Carolina Rural Health Research Program
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