Rural Health
Resources by Topic: Informal caregivers
Older Americans Act: Greatest Economic and Social Needs of Rural Older Adults
Policy brief discussing the economic and social needs for rural older adults. Offers policy and action recommendations for the reauthorization of the Older Americans Act, discussing rural aging programs, affordable housing, access to nutrition, social isolation, healthcare workforce shortages, and caregiver support.
Author(s): Kathy Greenlee, Abby Cox, L. Carter Florence, Josh Protas, and Rebecca Yeboah
Date: 10/2025
Sponsoring organization: National Rural Health Association
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Policy brief discussing the economic and social needs for rural older adults. Offers policy and action recommendations for the reauthorization of the Older Americans Act, discussing rural aging programs, affordable housing, access to nutrition, social isolation, healthcare workforce shortages, and caregiver support.
Author(s): Kathy Greenlee, Abby Cox, L. Carter Florence, Josh Protas, and Rebecca Yeboah
Date: 10/2025
Sponsoring organization: National Rural Health Association
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Caregiving in the US 2025: Caring Across States
Offers data on caregivers including demographics, tasks performed, finances and employment, and wellness. Includes rural, suburban, and urban breakdown for caregivers in 32 states.
Additional links: State-Specific Findings
Date: 10/2025
Sponsoring organizations: AARP, National Alliance for Caregiving
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Offers data on caregivers including demographics, tasks performed, finances and employment, and wellness. Includes rural, suburban, and urban breakdown for caregivers in 32 states.
Additional links: State-Specific Findings
Date: 10/2025
Sponsoring organizations: AARP, National Alliance for Caregiving
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Utilization of Home- and Community-Based Services among Rural Family Caregivers of Persons with Dementia: The Role of the Area Deprivation Index
Examines the association between utilization of home- and community-based services and area-level factors as measured by the Area Deprivation Index, utilizing survey data of 361 rural family caregivers of people with dementia. Analyzes the relationship between home or community service use and level of area deprivation, U.S. region, and other individual factors.
Author(s): Jasmine Santoyo-Olsson, Kenneth E. Covinsky, Jing Cheng, Dolores Gallagher Thompson, Veronica Yank
Citation: Frontiers in Public Health, 13, 1688161
Date: 10/2025
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Examines the association between utilization of home- and community-based services and area-level factors as measured by the Area Deprivation Index, utilizing survey data of 361 rural family caregivers of people with dementia. Analyzes the relationship between home or community service use and level of area deprivation, U.S. region, and other individual factors.
Author(s): Jasmine Santoyo-Olsson, Kenneth E. Covinsky, Jing Cheng, Dolores Gallagher Thompson, Veronica Yank
Citation: Frontiers in Public Health, 13, 1688161
Date: 10/2025
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Supporting Individuals With Cognitive Impairment and Family Members in Rural Communities: Protocol for a Mixed Methods Digital Health Study
Study protocol for the Northern Arizona Memory Study (NAZMS), which will support dementia risk identification and promote understanding of cognitive health needs and supports via surveys and interviews of Alzheimer's disease and related dementia (ADRD) caregiver and care-receiver dyads in rural Northern Arizona. Details study design and implementation, and highlights the importance of culturally-tailored, accessible, and practical ADRD care supports and interventions for rural and tribal families in Arizona.
Author(s): Eric S. Cerino, Megan C. McCoy, Margarita Martinez, et al.
Citation: JMIR Research Protocols, 14, e77958
Date: 10/2025
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Study protocol for the Northern Arizona Memory Study (NAZMS), which will support dementia risk identification and promote understanding of cognitive health needs and supports via surveys and interviews of Alzheimer's disease and related dementia (ADRD) caregiver and care-receiver dyads in rural Northern Arizona. Details study design and implementation, and highlights the importance of culturally-tailored, accessible, and practical ADRD care supports and interventions for rural and tribal families in Arizona.
Author(s): Eric S. Cerino, Megan C. McCoy, Margarita Martinez, et al.
Citation: JMIR Research Protocols, 14, e77958
Date: 10/2025
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Does Caregiver Well-Being Differ by Rurality and State Policy Environment? Identifying a Well-Being Typology for Rural, Suburban, and Urban Caregivers
Results of a study of informal caregiver well-being, exploring ways in which geographic location, individual circumstances, and state-level policies can impact a caregiver's health, comfort, and happiness. Features demographics and statistics with breakdowns by rural, suburban, and urban areas.
Author(s): Elena Maria Pojman, Florence Becot, Zuzana Bednarik, Carrie Henning-Smith
Citation: Rural Sociology, 90(3), e70015
Date: 09/2025
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Results of a study of informal caregiver well-being, exploring ways in which geographic location, individual circumstances, and state-level policies can impact a caregiver's health, comfort, and happiness. Features demographics and statistics with breakdowns by rural, suburban, and urban areas.
Author(s): Elena Maria Pojman, Florence Becot, Zuzana Bednarik, Carrie Henning-Smith
Citation: Rural Sociology, 90(3), e70015
Date: 09/2025
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Opportunities and Barriers to Engaging Caregivers in Firearm Suicide Prevention: Findings from Focus Groups with Caregivers of Veterans
Examines barriers and facilitators of conversations related to lethal means safety (LMS) among family members and significant others (caregivers) who live with or provide support to veterans, veterans at risk of suicide, and healthcare providers. Identifies themes from discussions with 32 caregivers, including discussion of rural attitudes toward firearm ownership and safety.
Author(s): Katherine MacWilliams, John Marmion, Dee Blascyk, et al.
Citation: Injury Epidemiology, 12, 59
Date: 09/2025
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Examines barriers and facilitators of conversations related to lethal means safety (LMS) among family members and significant others (caregivers) who live with or provide support to veterans, veterans at risk of suicide, and healthcare providers. Identifies themes from discussions with 32 caregivers, including discussion of rural attitudes toward firearm ownership and safety.
Author(s): Katherine MacWilliams, John Marmion, Dee Blascyk, et al.
Citation: Injury Epidemiology, 12, 59
Date: 09/2025
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Shifting Care Patterns: How Medicaid Policies Shape Family and Formal Care Use
Analyzes the impacts of Medicaid 1915(c) waivers on likelihood of receiving formal versus family care among adults aged 70 years and older with functional limitations, utilizing 2011-2019 National Health and Aging Trends Study (NHATS) data. Highlights the significance of waiver payments for family caregiving for population subgroups including Medicaid beneficiaries, rural residents, and people living with dementia.
Author(s): Johanna Thunell, Elise M. Parrish, Katherine E.M. Miller
Citation: Alzheimer's & Dementia, 21(9), e70715
Date: 09/2025
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Analyzes the impacts of Medicaid 1915(c) waivers on likelihood of receiving formal versus family care among adults aged 70 years and older with functional limitations, utilizing 2011-2019 National Health and Aging Trends Study (NHATS) data. Highlights the significance of waiver payments for family caregiving for population subgroups including Medicaid beneficiaries, rural residents, and people living with dementia.
Author(s): Johanna Thunell, Elise M. Parrish, Katherine E.M. Miller
Citation: Alzheimer's & Dementia, 21(9), e70715
Date: 09/2025
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Understanding the Influence of Social Determinants of Health on Symptom Reporting in Pediatric Cancer
Highlights a study on the social determinants of health of caregivers of children with cancer in Appalachia. Discusses the symptom burden of child cancer and breaks down data by child's age, rurality, and Appalachian versus non-Appalachian location, among other measures.
Author(s): Micah A. Skeens, Adelaide Booze, Mark Ranalli, Anna Olsavsky
Citation: Journal of Rural Health, 41(3), e70071
Date: 08/2025
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Highlights a study on the social determinants of health of caregivers of children with cancer in Appalachia. Discusses the symptom burden of child cancer and breaks down data by child's age, rurality, and Appalachian versus non-Appalachian location, among other measures.
Author(s): Micah A. Skeens, Adelaide Booze, Mark Ranalli, Anna Olsavsky
Citation: Journal of Rural Health, 41(3), e70071
Date: 08/2025
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Mental and Physical Health of US Rural/Urban Caregivers of Persons With Dementia
Presents a study on the physical and mental health of caregivers of people with dementia in rural and urban areas. Highlights access challenges for both physical and mental health in rural areas and compares rates of mental and physical issues among rural and urban caregivers.
Author(s): Phoebe Tran, Fei Wang, E-Shien Chang
Citation: PLOS ONE, 20(8), e0329260
Date: 08/2025
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Presents a study on the physical and mental health of caregivers of people with dementia in rural and urban areas. Highlights access challenges for both physical and mental health in rural areas and compares rates of mental and physical issues among rural and urban caregivers.
Author(s): Phoebe Tran, Fei Wang, E-Shien Chang
Citation: PLOS ONE, 20(8), e0329260
Date: 08/2025
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Rural Health Reimagined: Policy Support & Change for Rural Aging in New York
Outlines rural relevant recommendations developed at an April 2025 summit in preparation for the New York statewide Master Plan for Aging (MPA). Recommendations cover topics including access to healthcare, social isolation, ageism, supporting informal caregivers, strengthening the health workforce, and age-friendly practices in rural communities.
Date: 07/2025
Sponsoring organization: New York State Association for Rural Health
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Outlines rural relevant recommendations developed at an April 2025 summit in preparation for the New York statewide Master Plan for Aging (MPA). Recommendations cover topics including access to healthcare, social isolation, ageism, supporting informal caregivers, strengthening the health workforce, and age-friendly practices in rural communities.
Date: 07/2025
Sponsoring organization: New York State Association for Rural Health
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