Rural Health
Resources by Topic: Informal caregivers
Supporting Individuals With Cognitive Impairment and Family Members in Rural Communities: Protocol for a Mixed Methods Digital Health Study
Study protocol for the Northern Arizona Memory Study (NAZMS), which will support dementia risk identification and promote understanding of cognitive health needs and supports via surveys and interviews of Alzheimer's disease and related dementia (ADRD) caregiver and care-receiver dyads in rural Northern Arizona. Details study design and implementation, and highlights the importance of culturally-tailored, accessible, and practical ADRD care supports and interventions for rural and tribal families in Arizona.
Author(s): Eric S Cerino, Megan C McCoy, Margarita Martinez, et al.
Citation: JMIR Research Protocols, 14, e77958
Date: 10/2025
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Study protocol for the Northern Arizona Memory Study (NAZMS), which will support dementia risk identification and promote understanding of cognitive health needs and supports via surveys and interviews of Alzheimer's disease and related dementia (ADRD) caregiver and care-receiver dyads in rural Northern Arizona. Details study design and implementation, and highlights the importance of culturally-tailored, accessible, and practical ADRD care supports and interventions for rural and tribal families in Arizona.
Author(s): Eric S Cerino, Megan C McCoy, Margarita Martinez, et al.
Citation: JMIR Research Protocols, 14, e77958
Date: 10/2025
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Does Caregiver Well-Being Differ by Rurality and State Policy Environment? Identifying a Well-Being Typology for Rural, Suburban, and Urban Caregivers
Results of a study of informal caregiver well-being, exploring ways in which geographic location, individual circumstances, and state-level policies can impact a caregiver's health, comfort, and happiness. Features demographics and statistics with breakdowns by rural, suburban, and urban areas.
Author(s): Elena Maria Pojman, Florence Becot, Zuzana Bednarik, Carrie Henning-Smith
Citation: Rural Sociology, 90(3), e70015
Date: 09/2025
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Results of a study of informal caregiver well-being, exploring ways in which geographic location, individual circumstances, and state-level policies can impact a caregiver's health, comfort, and happiness. Features demographics and statistics with breakdowns by rural, suburban, and urban areas.
Author(s): Elena Maria Pojman, Florence Becot, Zuzana Bednarik, Carrie Henning-Smith
Citation: Rural Sociology, 90(3), e70015
Date: 09/2025
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Opportunities and Barriers to Engaging Caregivers in Firearm Suicide Prevention: Findings from Focus Groups with Caregivers of Veterans
Examines barriers and facilitators of conversations related to lethal means safety (LMS) among family members and significant others (caregivers) who live with or provide support to veterans, veterans at risk of suicide, and healthcare providers. Identifies themes from discussions with 32 caregivers, including discussion of rural attitudes toward firearm ownership and safety.
Author(s): Katherine MacWilliams, John Marmion, Dee Blascyk, et al.
Citation: Injury Epidemiology, 12, 59
Date: 09/2025
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Examines barriers and facilitators of conversations related to lethal means safety (LMS) among family members and significant others (caregivers) who live with or provide support to veterans, veterans at risk of suicide, and healthcare providers. Identifies themes from discussions with 32 caregivers, including discussion of rural attitudes toward firearm ownership and safety.
Author(s): Katherine MacWilliams, John Marmion, Dee Blascyk, et al.
Citation: Injury Epidemiology, 12, 59
Date: 09/2025
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Shifting Care Patterns: How Medicaid Policies Shape Family and Formal Care Use
Analyzes the impacts of Medicaid 1915(c) waivers on likelihood of receiving formal versus family care among adults aged 70 years and older with functional limitations, utilizing 2011-2019 National Health and Aging Trends Study (NHATS) data. Highlights the significance of waiver payments for family caregiving for population subgroups including Medicaid beneficiaries, rural residents, and people living with dementia.
Author(s): Johanna Thunell, Elise M Parrish, Katherine E M Miller
Citation: Alzheimer's & Dementia, 21(9), e70715
Date: 09/2025
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Analyzes the impacts of Medicaid 1915(c) waivers on likelihood of receiving formal versus family care among adults aged 70 years and older with functional limitations, utilizing 2011-2019 National Health and Aging Trends Study (NHATS) data. Highlights the significance of waiver payments for family caregiving for population subgroups including Medicaid beneficiaries, rural residents, and people living with dementia.
Author(s): Johanna Thunell, Elise M Parrish, Katherine E M Miller
Citation: Alzheimer's & Dementia, 21(9), e70715
Date: 09/2025
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Understanding the Influence of Social Determinants of Health on Symptom Reporting in Pediatric Cancer
Highlights a study on the social determinants of health of caregivers of children with cancer in Appalachia. Discusses the symptom burden of child cancer and breaks down data by child's age, rurality, and Appalachian versus non-Appalachian location, among other measures.
Author(s): Micah A. Skeens, Adelaide Booze, Mark Ranalli, Anna Olsavsky
Citation: Journal of Rural Health, 41(3), e70071
Date: 08/2025
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Highlights a study on the social determinants of health of caregivers of children with cancer in Appalachia. Discusses the symptom burden of child cancer and breaks down data by child's age, rurality, and Appalachian versus non-Appalachian location, among other measures.
Author(s): Micah A. Skeens, Adelaide Booze, Mark Ranalli, Anna Olsavsky
Citation: Journal of Rural Health, 41(3), e70071
Date: 08/2025
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Mental and Physical Health of US Rural/Urban Caregivers of Persons With Dementia
Presents a study on the physical and mental health of caregivers of people with dementia in rural and urban areas. Highlights access challenges for both physical and mental health in rural areas and compares rates of mental and physical issues among rural and urban caregivers.
Author(s): Phoebe Tran, Fei Wang, E-Shien Chang
Citation: PLOS ONE, 20(8), e0329260
Date: 08/2025
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Presents a study on the physical and mental health of caregivers of people with dementia in rural and urban areas. Highlights access challenges for both physical and mental health in rural areas and compares rates of mental and physical issues among rural and urban caregivers.
Author(s): Phoebe Tran, Fei Wang, E-Shien Chang
Citation: PLOS ONE, 20(8), e0329260
Date: 08/2025
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Rural Health Reimagined: Policy Support & Change for Rural Aging in New York
Outlines rural relevant recommendations developed at an April 2025 summit in preparation for the New York statewide Master Plan for Aging (MPA). Recommendations cover topics including access to healthcare, social isolation, ageism, supporting informal caregivers, strengthening the health workforce, and age-friendly practices in rural communities.
Date: 07/2025
Sponsoring organization: New York State Association for Rural Health
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Outlines rural relevant recommendations developed at an April 2025 summit in preparation for the New York statewide Master Plan for Aging (MPA). Recommendations cover topics including access to healthcare, social isolation, ageism, supporting informal caregivers, strengthening the health workforce, and age-friendly practices in rural communities.
Date: 07/2025
Sponsoring organization: New York State Association for Rural Health
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Caregiving in the US 2025
A national profile of family caregivers, describing demographics, living situations, wellness, and more as well as caregiving related policies. Discusses rural throughout.
Additional links: Executive Summary, Full Report, Infographic
Date: 07/2025
Sponsoring organizations: AARP, National Alliance for Caregiving
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A national profile of family caregivers, describing demographics, living situations, wellness, and more as well as caregiving related policies. Discusses rural throughout.
Additional links: Executive Summary, Full Report, Infographic
Date: 07/2025
Sponsoring organizations: AARP, National Alliance for Caregiving
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AAAs' Partnership With School of Medicine Expands Dementia Caregiving Services
Case study highlighting the implementation of a program promoting wellness for unpaid caregivers in Indiana, including in rural areas. Discusses collaboration between Area Agencies on Aging and community and state partners.
Date: 07/2025
Sponsoring organization: USAging
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Case study highlighting the implementation of a program promoting wellness for unpaid caregivers in Indiana, including in rural areas. Discusses collaboration between Area Agencies on Aging and community and state partners.
Date: 07/2025
Sponsoring organization: USAging
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Vermont Partnership Offers Caregivers Wellness Programs and Respite
Case study highlighting a partnership between a Area Agency on Aging in Vermont and a regional nonprofit health plan to offer respite opportunities to rural and suburban caregivers.
Date: 07/2025
Sponsoring organization: USAging
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Case study highlighting a partnership between a Area Agency on Aging in Vermont and a regional nonprofit health plan to offer respite opportunities to rural and suburban caregivers.
Date: 07/2025
Sponsoring organization: USAging
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