Rural Health
Resources by Topic: Informal caregivers
Listening to Riders and Providers: A Synthesis Report on NADTC's Focus Groups and Stakeholder Meetings
Summarizes findings from four focus groups exploring how perceptions of transportation users may be impacted by race, ethnicity, culture, or other personal characteristics. Presents findings from older adults, younger adults with disabilities, and caregivers. Also reports on stakeholder meetings with urban/suburban and rural stakeholders. Identifies lessons learned and next steps to inform transportation diversity, equity, and inclusion efforts.
Date: 02/2023
Type: Document
Sponsoring organization: National Aging and Disability Transportation Center
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Summarizes findings from four focus groups exploring how perceptions of transportation users may be impacted by race, ethnicity, culture, or other personal characteristics. Presents findings from older adults, younger adults with disabilities, and caregivers. Also reports on stakeholder meetings with urban/suburban and rural stakeholders. Identifies lessons learned and next steps to inform transportation diversity, equity, and inclusion efforts.
Date: 02/2023
Type: Document
Sponsoring organization: National Aging and Disability Transportation Center
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Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) Meeting Minutes, January 19-20, 2023
Summarizes the Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) meeting held on January 19-20, 2023. Includes presentations and discussions on the Administration for Community Living (ACL) and the National Caregiver Strategy, age-friendly public health systems, the Area Health Education Centers (AHEC) Program, and Title VII mental and behavioral health education and training programs. Includes rural references throughout.
Date: 01/2023
Type: Document
Sponsoring organization: Advisory Committee on Interdisciplinary Community-Based Linkages
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Summarizes the Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) meeting held on January 19-20, 2023. Includes presentations and discussions on the Administration for Community Living (ACL) and the National Caregiver Strategy, age-friendly public health systems, the Area Health Education Centers (AHEC) Program, and Title VII mental and behavioral health education and training programs. Includes rural references throughout.
Date: 01/2023
Type: Document
Sponsoring organization: Advisory Committee on Interdisciplinary Community-Based Linkages
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2023 Alzheimer's Disease Facts and Figures
Provides an overview of Alzheimer's disease in the United States, including prevalence, mortality and morbidity, and issues related to caregivers of persons with Alzheimer's. Includes discussions about challenges of the disease for patients, providers, and caregivers in rural areas.
Author(s): Joseph Gaugler, Bryan James, Tricia Johnson, et al.
Date: 2023
Type: Document
Sponsoring organization: Alzheimer's Association
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Provides an overview of Alzheimer's disease in the United States, including prevalence, mortality and morbidity, and issues related to caregivers of persons with Alzheimer's. Includes discussions about challenges of the disease for patients, providers, and caregivers in rural areas.
Author(s): Joseph Gaugler, Bryan James, Tricia Johnson, et al.
Date: 2023
Type: Document
Sponsoring organization: Alzheimer's Association
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2022 National Strategy to Support Family Caregivers
Report details and defines a national support strategy for family caregivers of all ages. Highlights strategies for caring for children, elderly adults, people with disabilities, people with chronic conditions, and post-acute conditions, among others. Also, discusses recommendations for caregivers residing in rural and underserved areas.
Additional links: Actions for States, Communities, and Others, Federal Actions, First Principles: Cross-Cutting Considerations for Family Caregiver Support
Date: 09/2022
Type: Document
Sponsoring organization: Administration for Community Living
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Report details and defines a national support strategy for family caregivers of all ages. Highlights strategies for caring for children, elderly adults, people with disabilities, people with chronic conditions, and post-acute conditions, among others. Also, discusses recommendations for caregivers residing in rural and underserved areas.
Additional links: Actions for States, Communities, and Others, Federal Actions, First Principles: Cross-Cutting Considerations for Family Caregiver Support
Date: 09/2022
Type: Document
Sponsoring organization: Administration for Community Living
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Perceived Benefits of Geriatric Specialty Telemedicine among Rural Patients and Caregivers
Explores the perceived benefits of a Veterans Health Administration (VHA) geriatric specialty telemedicine service (GRECC Connect), which connects geriatric interdisciplinary teams in urban areas with older veterans in rural areas through videoconferencing platforms. Summarizes results of interviews 30 rural older adults enrolled in the VHA and their caregivers about the content and quality of their GRECC Connect visits.
Author(s): Eileen M. Dryden, Meaghan A. Kennedy, Jennifer Conti, et al.
Citation: Health Services Research, 2022
Date: 08/2022
Type: Document
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Explores the perceived benefits of a Veterans Health Administration (VHA) geriatric specialty telemedicine service (GRECC Connect), which connects geriatric interdisciplinary teams in urban areas with older veterans in rural areas through videoconferencing platforms. Summarizes results of interviews 30 rural older adults enrolled in the VHA and their caregivers about the content and quality of their GRECC Connect visits.
Author(s): Eileen M. Dryden, Meaghan A. Kennedy, Jennifer Conti, et al.
Citation: Health Services Research, 2022
Date: 08/2022
Type: Document
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Family Caregiving for People with Cancer and Other Serious Illnesses: Proceedings of a Workshop
Reports on a May 2022 workshop exploring issues related to family caregivers and developing strategies to support and recognize their role in caring for their loved ones with cancer or other chronic illnesses. Discusses the increased role of family caregivers in rural and tribal communities and the importance of providing services, addressing social determinants of health, and allocating funding to better support family caregivers in these communities.
Additional links: Read Online
Author(s): Board on Health Care Services
Date: 05/2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Reports on a May 2022 workshop exploring issues related to family caregivers and developing strategies to support and recognize their role in caring for their loved ones with cancer or other chronic illnesses. Discusses the increased role of family caregivers in rural and tribal communities and the importance of providing services, addressing social determinants of health, and allocating funding to better support family caregivers in these communities.
Additional links: Read Online
Author(s): Board on Health Care Services
Date: 05/2022
Type: Document
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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The State of the World's Children 2021 - On My Mind: Promoting, Protecting and Caring for Children's Mental Health
Examines child, adolescent, and caregiver mental health, focusing on risks and protective factors at critical moments in the life course. Discusses COVID-19's effect on mental health, and the social determinants that shape mental health and well-being. Features statistics on child mortality rates, maternal and child health, HIV/AIDS, nutrition, early childhood development, and education, with breakdowns by countries and territories including Palau, Samoa, Federated States of Micronesia, and the Marshall Islands.
Date: 10/2021
Type: Document
Sponsoring organization: United Nations Children's Fund (UNICEF)
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Examines child, adolescent, and caregiver mental health, focusing on risks and protective factors at critical moments in the life course. Discusses COVID-19's effect on mental health, and the social determinants that shape mental health and well-being. Features statistics on child mortality rates, maternal and child health, HIV/AIDS, nutrition, early childhood development, and education, with breakdowns by countries and territories including Palau, Samoa, Federated States of Micronesia, and the Marshall Islands.
Date: 10/2021
Type: Document
Sponsoring organization: United Nations Children's Fund (UNICEF)
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Psychosocial Predictors of Adverse Outcomes in Rural Heart Failure Caregivers
Results of a study of 114 rural and 426 urban caregivers in the southeastern United States, to examine whether social support, problem solving, and family function affected burden in caregivers of individuals with heart failure. Features demographic statistics and descriptive differences with breakdowns between urban and rural caregivers.
Author(s): Joan S. Grant, Lucinda J. Graven, Glenna Schluck, Laurie Abbott
Citation: Rural and Remote Health, 21(3), 6497
Date: 07/2021
Type: Document
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Results of a study of 114 rural and 426 urban caregivers in the southeastern United States, to examine whether social support, problem solving, and family function affected burden in caregivers of individuals with heart failure. Features demographic statistics and descriptive differences with breakdowns between urban and rural caregivers.
Author(s): Joan S. Grant, Lucinda J. Graven, Glenna Schluck, Laurie Abbott
Citation: Rural and Remote Health, 21(3), 6497
Date: 07/2021
Type: Document
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Remote Patient Monitoring Helps Rural Patients Recover at Home
Features Essentia Health's remote patient monitoring program, which allows patients to recover at home while still having access to medical attention. Describes how the program was used to treat COVID-19 patients, with plans to continue the program to treat other chronic diseases.
Author(s): Allee Mead
Citation: Rural Monitor
Date: 07/2021
Type: Document
Sponsoring organization: Rural Health Information Hub
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Features Essentia Health's remote patient monitoring program, which allows patients to recover at home while still having access to medical attention. Describes how the program was used to treat COVID-19 patients, with plans to continue the program to treat other chronic diseases.
Author(s): Allee Mead
Citation: Rural Monitor
Date: 07/2021
Type: Document
Sponsoring organization: Rural Health Information Hub
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Preferences for Long-Term Care Arrangements among Rural and Urban Older Adults
Describes long-term care preferences of 4,333 older people with functional limitations. Features statistics on characteristics of respondents, with breakdowns by urban or rural location.
Author(s): Carrie Henning-Smith, John Mulcahy, Megan Lahr, Jill Tanem
Date: 05/2021
Type: Document
Sponsoring organization: University of Minnesota Rural Health Research Center
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Describes long-term care preferences of 4,333 older people with functional limitations. Features statistics on characteristics of respondents, with breakdowns by urban or rural location.
Author(s): Carrie Henning-Smith, John Mulcahy, Megan Lahr, Jill Tanem
Date: 05/2021
Type: Document
Sponsoring organization: University of Minnesota Rural Health Research Center
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