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Rural Health
Resources by Topic: Informal caregivers

Caregiving among Rural Adults
Infographic that presents findings from the Behavioral Risk Factor Surveillance System (BRFSS) on characteristics of individuals in rural areas who provide care to a friend or family member. Includes caregiver demographics, time spent on caregiving, and types of care provided.
Date: 07/2020
Type: Document
Sponsoring organization: Centers for Disease Control and Prevention
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Caregiving in the U.S. 2020
A national profile of unpaid family caregivers. Describes care recipients' living situations and health status, caregiving activities, caregiver well-being, and related topics. Includes information specific to rural caregivers, with comparisons of their experiences in 2015 and 2020 as well as comparisons to non-rural caregivers' experiences. Also offers profiles of different types of caregivers.
Additional links: Fact Sheet: The "Typical" Caregiver of a Care Recipient Living in a Rural Area, Full Report
Date: 05/2020
Type: Document
Sponsoring organizations: AARP, National Alliance for Caregiving
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Informal Caregiving and Technology in Rural America
Highlights the challenges caregivers face in rural communities. Discusses how technology can offer potential solutions and identifies barriers to those solutions, such as broadband connectivity. Features Avera Health's eCare Senior Care, which provides a range of technology-assisted care services for assisted living and senior housing programs, as well as long-term care facilities.
Author(s): Tami Lichtenberg
Citation: Rural Monitor
Date: 01/2020
Type: Document
Sponsoring organization: Rural Health Information Hub
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Study Protocol of Coaching End-of-Life Palliative Care for Advanced Heart Failure Patients and Their Family Caregivers in Rural Appalachia: A Randomized Controlled Trial
Describes a clinical trial to study an end-of-life palliative care program for heart failure patients in rural West Virginia. Discusses the prevalence of heart failure in rural Appalachia and the need for palliative care training for family caregivers.
Author(s): Ubolrat Piamjariyakul, Trisha Petitte, Angel Smothers, et al.
Citation: BMC Palliative Care, 18, 119
Date: 12/2019
Type: Document
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Supportive Services and Caregiving for Older Rural Adults: Policy Brief and Recommendations to the Secretary
Provides an overview of current supportive services and caregiving policies for rural seniors, in terms of availability, accessibility, and acceptability of services. Explores topics including long-term services and supports, telehealth, care coordination, transportation, stigma, and unpaid caregivers, and describes federal programs for older adults. Offers policy recommendations and considerations.
Date: 08/2019
Type: Document
Sponsoring organization: National Advisory Committee on Rural Health and Human Services
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In Support of Family Caregivers: A Snapshot of Five States
Examines policies developed in Washington State, Minnesota, Hawaii, Tennessee, and Maine to support family caregivers, including those in rural areas. Features demographic characteristics of the states profiled, state expenditures by the Administration for Community Living in FY2016 on older adults and caregivers, and data on state Medicaid policies affecting these groups.
Additional links: Executive Summary
Author(s): Jennifer Aufill, Julia Burgdorf, Jennifer Wolff
Date: 06/2019
Type: Document
Sponsoring organizations: Milbank Memorial Fund, The John A. Hartford Foundation
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Unmet Need for Personal Care Assistance among Rural and Urban Older Adults
Policy brief exploring the unmet need for personal care help across 11 activities, such as self-care, household chores, and mobility-related tasks, with breakdowns by urban and rural location.
Author(s): Carrie Henning-Smith, Zhengtian Wu, Megan Lahr
Date: 06/2019
Type: Document
Sponsoring organization: University of Minnesota Rural Health Research Center
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Perceived Benefits of Peer Support Groups for Stroke Survivors and Caregivers in Rural North Carolina
Describes the experiences of stroke survivors and caregivers in four rural North Carolina counties who participated in peer support groups. Findings based on four focus groups with 32 participants, who were predominantly non-Hispanic, white, and female, with an average age of 67.
Author(s): Erin R. Christensen, Shannon L. Golden, Sabina B. Gesell
Citation: North Carolina Medical Journal, 80(3), 143-148
Date: 2019
Type: Document
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Aging in Appalachia
Episodes of the radio program "Inside Appalachia," exploring challenges faced by elderly people in Appalachia, and the resources available to them. Topics include caregiver shortages, Alzheimer's disease, dying with dignity, and isolation and loneliness.
Date: 2019
Type: Website
Sponsoring organization: West Virginia Public Broadcasting
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Resources for Caregiving in Rural Communities
Policy brief describing national and state-level resources being used to support unpaid caregivers in rural areas. Information was gleaned from journal articles, websites, and interviews with 41 informants representing providers, academics, advocacy groups, and others.
Author(s): Megan Lahr, Carrie Henning-Smith
Date: 08/2018
Type: Document
Sponsoring organization: University of Minnesota Rural Health Research Center
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