Rural Health
Resources by Topic: Informal caregivers
Understanding the Influence of Social Determinants of Health on Symptom Reporting in Pediatric Cancer
Highlights a study on the social determinants of health of caregivers of children with cancer in Appalachia. Discusses the symptom burden of child cancer and breaks down data by child's age, rurality, and Appalachian versus non-Appalachian location, among other measures.
Author(s): Micah A. Skeens, Adelaide Booze, Mark Ranalli, Anna Olsavsky
Citation: Journal of Rural Health, 41(3), e70071
Date: 08/2025
view details
Highlights a study on the social determinants of health of caregivers of children with cancer in Appalachia. Discusses the symptom burden of child cancer and breaks down data by child's age, rurality, and Appalachian versus non-Appalachian location, among other measures.
Author(s): Micah A. Skeens, Adelaide Booze, Mark Ranalli, Anna Olsavsky
Citation: Journal of Rural Health, 41(3), e70071
Date: 08/2025
view details
Mental and Physical Health of US Rural/Urban Caregivers of Persons With Dementia
Presents a study on the physical and mental health of caregivers of people with dementia in rural and urban areas. Highlights access challenges for both physical and mental health in rural areas and compares rates of mental and physical issues among rural and urban caregivers.
Author(s): Phoebe Tran, Fei Wang, E-Shien Chang
Citation: PLOS ONE, 20(8), e0329260
Date: 08/2025
view details
Presents a study on the physical and mental health of caregivers of people with dementia in rural and urban areas. Highlights access challenges for both physical and mental health in rural areas and compares rates of mental and physical issues among rural and urban caregivers.
Author(s): Phoebe Tran, Fei Wang, E-Shien Chang
Citation: PLOS ONE, 20(8), e0329260
Date: 08/2025
view details
Rural Health Reimagined: Policy Support & Change for Rural Aging in New York
Outlines rural relevant recommendations developed at an April 2025 summit in preparation for the New York statewide Master Plan for Aging (MPA). Recommendations cover topics including access to healthcare, social isolation, ageism, supporting informal caregivers, strengthening the health workforce, and age-friendly practices in rural communities.
Date: 07/2025
Sponsoring organization: New York State Association for Rural Health
view details
Outlines rural relevant recommendations developed at an April 2025 summit in preparation for the New York statewide Master Plan for Aging (MPA). Recommendations cover topics including access to healthcare, social isolation, ageism, supporting informal caregivers, strengthening the health workforce, and age-friendly practices in rural communities.
Date: 07/2025
Sponsoring organization: New York State Association for Rural Health
view details
Rural-Suburban-Urban Differences in Caregiving in the Northeast U.S. Region
Analyzes characteristics of caregiving experiences in the Northeast according to rural, suburban, or urban geography. Focuses on percentage of people who have provided caregiving, as well as their income, weekly care expenses, use of social safety net programs, desire to participate in the workforce, and demographic profile.
Author(s): Elena Pojman, Florence Becot
Date: 06/2025
Sponsoring organizations: North Central Regional Center for Rural Development, Northeast Regional Center for Rural Development, PennState
view details
Analyzes characteristics of caregiving experiences in the Northeast according to rural, suburban, or urban geography. Focuses on percentage of people who have provided caregiving, as well as their income, weekly care expenses, use of social safety net programs, desire to participate in the workforce, and demographic profile.
Author(s): Elena Pojman, Florence Becot
Date: 06/2025
Sponsoring organizations: North Central Regional Center for Rural Development, Northeast Regional Center for Rural Development, PennState
view details
Strategies and Interventions to Strengthen Support for Family Caregivers for Individuals with Serious Illness or Disability: Proceedings of a Workshop - In Brief
Summarizes a workshop discussing issues related to caregiving including successful interventions and strategies addressing burdens placed on caregivers, the needs of specific caregiver populations, how to scale successful programs, and policies for supporting caregivers. Discuses rural specific caregiving challenges.
Additional links: Read Online
Date: 2025
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
view details
Summarizes a workshop discussing issues related to caregiving including successful interventions and strategies addressing burdens placed on caregivers, the needs of specific caregiver populations, how to scale successful programs, and policies for supporting caregivers. Discuses rural specific caregiving challenges.
Additional links: Read Online
Date: 2025
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
view details
In Support of Caregivers: Key Accomplishments of Lifespan Respite Program Grantees
Highlights the work of state grantees in the Lifespan Respite Care Program. Discusses 8 key accomplishments related to collaboration, accessibility, affordability, using data, workforce, innovation, sustainability, and outreach. Discusses rural throughout.
Author(s): Susan Janko Summers
Date: 2025
Sponsoring organization: ARCH National Respite Network and Resource Center
view details
Highlights the work of state grantees in the Lifespan Respite Care Program. Discusses 8 key accomplishments related to collaboration, accessibility, affordability, using data, workforce, innovation, sustainability, and outreach. Discusses rural throughout.
Author(s): Susan Janko Summers
Date: 2025
Sponsoring organization: ARCH National Respite Network and Resource Center
view details
Rural American Hospice Insights Report: Understanding the Needs of the Rural Family Caregiver
Presents findings from a survey of 400 rural family caregivers regarding their knowledge and perceptions of hospice care. Covers respondents' demographics, communication and learning preferences, awareness of and beliefs about hospice, priorities regarding hospice care, and more. Requires name, organization information, and email address to download.
Date: 12/2024
Sponsoring organizations: National Alliance for Care at Home, Transcend Strategy Group
view details
Presents findings from a survey of 400 rural family caregivers regarding their knowledge and perceptions of hospice care. Covers respondents' demographics, communication and learning preferences, awareness of and beliefs about hospice, priorities regarding hospice care, and more. Requires name, organization information, and email address to download.
Date: 12/2024
Sponsoring organizations: National Alliance for Care at Home, Transcend Strategy Group
view details
Caring for Pennsylvanians with Dementia and Related Disorders: An Analysis of Needs and Capacity in Rural Areas, 2024 to 2034
Examines potential demand for care of people living with Alzheimer's disease or a related disorder (ADRD) in rural Pennsylvania. Features county-level maps showing numbers of various types of care facilities and their capacity, and statistics including projections of the population aged 65+ and rate of increase from 2020 to 2040, age-adjusted mortality rate from ADRD, projections of number of ADRD cases by 2040, and impact of smoking and obesity on ADRD, with breakdowns by county.
Author(s): Dara P. Bourassa, Sara A. Grove
Date: 12/2024
Sponsoring organization: Center for Rural Pennsylvania
view details
Examines potential demand for care of people living with Alzheimer's disease or a related disorder (ADRD) in rural Pennsylvania. Features county-level maps showing numbers of various types of care facilities and their capacity, and statistics including projections of the population aged 65+ and rate of increase from 2020 to 2040, age-adjusted mortality rate from ADRD, projections of number of ADRD cases by 2040, and impact of smoking and obesity on ADRD, with breakdowns by county.
Author(s): Dara P. Bourassa, Sara A. Grove
Date: 12/2024
Sponsoring organization: Center for Rural Pennsylvania
view details
An Aging America: Priorities and Policy Innovations
Presents themes that emerged during the National Academy of State Health Policy's 2024 pre-conference on aging. Highlights examples of innovative approaches in New York and North Dakota, as well as federal aging initiatives that support states.
Date: 11/2024
Sponsoring organization: National Academy for State Health Policy
view details
Presents themes that emerged during the National Academy of State Health Policy's 2024 pre-conference on aging. Highlights examples of innovative approaches in New York and North Dakota, as well as federal aging initiatives that support states.
Date: 11/2024
Sponsoring organization: National Academy for State Health Policy
view details
Transitional Palliative Care for Family Caregivers: Outcomes From a Randomized Controlled Trial
Examines the influence of mentoring from a palliative care nurse on family caregivers in rural and medically underserved areas of three states. Analyzes adult caregivers from 2018-2022 after their care recipient who utilized inpatient palliative care was discharged from the hospital. Compares a control group who received only monthly phone calls with an intervention group who received teaching, guidance, and counseling. Discusses importance of both caregiver support and patient wellness.
Author(s): Joan M. Griffin, Jay N. Mandrekar, Catherine E. Vanderboom, et al.
Citation: Journal of Pain and Symptom Management, 68(5), 456-466
Date: 11/2024
view details
Examines the influence of mentoring from a palliative care nurse on family caregivers in rural and medically underserved areas of three states. Analyzes adult caregivers from 2018-2022 after their care recipient who utilized inpatient palliative care was discharged from the hospital. Compares a control group who received only monthly phone calls with an intervention group who received teaching, guidance, and counseling. Discusses importance of both caregiver support and patient wellness.
Author(s): Joan M. Griffin, Jay N. Mandrekar, Catherine E. Vanderboom, et al.
Citation: Journal of Pain and Symptom Management, 68(5), 456-466
Date: 11/2024
view details