Rural Health
Resources by Topic: Informal caregivers
Supporting People with Disabilities in Rural Communities, with Rayna Sage and Catherine Ipsen
An episode of the Exploring Rural Health podcast featuring Rayna Sage, PhD, and Catherine Ipsen, PhD, co-directors of the Research and Training Center on Disability in Rural Communities at the University of Montana. Focuses on the challenges facing rural people with disabilities and services and support systems that enable them to achieve and maintain quality of life.
Date: 01/2024
Sponsoring organization: Rural Health Information Hub
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An episode of the Exploring Rural Health podcast featuring Rayna Sage, PhD, and Catherine Ipsen, PhD, co-directors of the Research and Training Center on Disability in Rural Communities at the University of Montana. Focuses on the challenges facing rural people with disabilities and services and support systems that enable them to achieve and maintain quality of life.
Date: 01/2024
Sponsoring organization: Rural Health Information Hub
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Compendium of Best Practices for Rural Age-Friendly Care
Offers best practices, models of care, policies, and more related to offering age-friendly care in rural settings. Covers care coordination, caregiving support, behavioral health, community programming, community health workers, the 4Ms, and state-level priorities.
Date: 2024
Sponsoring organizations: National Rural Health Association, The John A. Hartford Foundation
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Offers best practices, models of care, policies, and more related to offering age-friendly care in rural settings. Covers care coordination, caregiving support, behavioral health, community programming, community health workers, the 4Ms, and state-level priorities.
Date: 2024
Sponsoring organizations: National Rural Health Association, The John A. Hartford Foundation
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2024 Chartbook: Supporting Native Elders in Their Communities: Title VI Native American Aging Programs and Services
Offers findings from the 2023 Title VI Native American Aging Program Survey. Discusses service provision, nutrition and traditional foods, services and supports for caregivers, transportation, elder abuse, program staffing and funding, and partnerships.
Date: 2024
Sponsoring organization: USAging
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Offers findings from the 2023 Title VI Native American Aging Program Survey. Discusses service provision, nutrition and traditional foods, services and supports for caregivers, transportation, elder abuse, program staffing and funding, and partnerships.
Date: 2024
Sponsoring organization: USAging
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Sociodemographic Differences in COVID-19 Pandemic Experiences Among Families in the United States
Examines challenges experienced by individuals during the COVID-19 pandemic according to sociodemographic differences. Analyzes survey data focused on children and caregivers and their experiences with infection and testing, healthcare, school, access to food, child care and work, financial concerns, and more. Data is broken down by demographic variables such as caregiver education, age of children, and rural versus urban location.
Author(s): Kaja Z. LeWinn, Leonardo Trasande, Andrew Law, et al.
Citation: JAMA Network Open, 6(8)
Date: 08/2023
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Examines challenges experienced by individuals during the COVID-19 pandemic according to sociodemographic differences. Analyzes survey data focused on children and caregivers and their experiences with infection and testing, healthcare, school, access to food, child care and work, financial concerns, and more. Data is broken down by demographic variables such as caregiver education, age of children, and rural versus urban location.
Author(s): Kaja Z. LeWinn, Leonardo Trasande, Andrew Law, et al.
Citation: JAMA Network Open, 6(8)
Date: 08/2023
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Exploring the Other Side of Alzheimer's Disease and Related Dementia: Informal Caregivers
Provides national data on Alzheimer's Disease and Related Dementia (ADRD) informal caregivers. Includes information on metro versus nonmetro caregiver relationship to patient, sex, age, education, marital status, types of caregiving, and amount of time caregiving, utilizing data from the National Health and Aging Trends Study.
Author(s): Adee Athiyaman
Date: 08/2023
Sponsoring organization: Illinois Institute for Rural Affairs
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Provides national data on Alzheimer's Disease and Related Dementia (ADRD) informal caregivers. Includes information on metro versus nonmetro caregiver relationship to patient, sex, age, education, marital status, types of caregiving, and amount of time caregiving, utilizing data from the National Health and Aging Trends Study.
Author(s): Adee Athiyaman
Date: 08/2023
Sponsoring organization: Illinois Institute for Rural Affairs
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Palliative Care Needs and Preferences of Older Adults with Advanced or Serious Chronic Illnesses and their Families in Rural Communities of Indiana, USA
Presents the experiences of caregivers in rural Indiana related to palliative care, the needs of older adults with chronic illnesses, and the impacts on their families. Discusses themes such as managing pain, caregiver trust, distance and access to care, managing difficult conversations, caregiver burden, and use of telehealth in rural areas.
Author(s): Nasreen Lalani, Kawther Hamash, Yitong Wang
Citation: Journal of Rural Health, 40(2), 368-375
Date: 08/2023
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Presents the experiences of caregivers in rural Indiana related to palliative care, the needs of older adults with chronic illnesses, and the impacts on their families. Discusses themes such as managing pain, caregiver trust, distance and access to care, managing difficult conversations, caregiver burden, and use of telehealth in rural areas.
Author(s): Nasreen Lalani, Kawther Hamash, Yitong Wang
Citation: Journal of Rural Health, 40(2), 368-375
Date: 08/2023
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Arkansas State Plan on Aging: Fiscal Years 2024-2027
Provides direction for long-term care efforts in the state of Arkansas. Focuses on implementation of the Older American Act (OAA), COVID-19 recovery, equity, access to home and community-based services, and caregiving infrastructure. Highlights population data on rural Arkansas citizens and rural-specific priorities.
Date: 06/2023
Sponsoring organization: Arkansas Department of Human Services
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Provides direction for long-term care efforts in the state of Arkansas. Focuses on implementation of the Older American Act (OAA), COVID-19 recovery, equity, access to home and community-based services, and caregiving infrastructure. Highlights population data on rural Arkansas citizens and rural-specific priorities.
Date: 06/2023
Sponsoring organization: Arkansas Department of Human Services
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Perceived Benefits of Geriatric Specialty Telemedicine among Rural Patients and Caregivers
Explores the perceived benefits of a Veterans Health Administration (VHA) geriatric specialty telemedicine service (GRECC Connect), which connects geriatric interdisciplinary teams in urban areas with older veterans in rural areas through videoconferencing platforms. Summarizes results of interviews 30 rural older adults enrolled in the VHA and their caregivers about the content and quality of their GRECC Connect visits.
Author(s): Eileen M. Dryden, Meaghan A. Kennedy, Jennifer Conti, et al.
Citation: Health Services Research, 58(Suppl 1), 26-35
Date: 02/2023
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Explores the perceived benefits of a Veterans Health Administration (VHA) geriatric specialty telemedicine service (GRECC Connect), which connects geriatric interdisciplinary teams in urban areas with older veterans in rural areas through videoconferencing platforms. Summarizes results of interviews 30 rural older adults enrolled in the VHA and their caregivers about the content and quality of their GRECC Connect visits.
Author(s): Eileen M. Dryden, Meaghan A. Kennedy, Jennifer Conti, et al.
Citation: Health Services Research, 58(Suppl 1), 26-35
Date: 02/2023
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Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) Meeting Minutes, January 19-20, 2023
Summarizes the Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) meeting held on January 19-20, 2023. Includes presentations and discussions on the Administration for Community Living (ACL) and the National Caregiver Strategy, age-friendly public health systems, the Area Health Education Centers (AHEC) Program, and Title VII mental and behavioral health education and training programs. Includes rural references throughout.
Date: 01/2023
Sponsoring organization: Advisory Committee on Interdisciplinary Community-Based Linkages
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Summarizes the Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) meeting held on January 19-20, 2023. Includes presentations and discussions on the Administration for Community Living (ACL) and the National Caregiver Strategy, age-friendly public health systems, the Area Health Education Centers (AHEC) Program, and Title VII mental and behavioral health education and training programs. Includes rural references throughout.
Date: 01/2023
Sponsoring organization: Advisory Committee on Interdisciplinary Community-Based Linkages
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2022 National Strategy to Support Family Caregivers
Report details and defines a national support strategy for family caregivers of all ages. Highlights strategies for caring for children, elderly adults, people with disabilities, people with chronic conditions, and post-acute conditions, among others. Also, discusses recommendations for caregivers residing in rural areas.
Additional links: Actions for States, Communities, and Others, Federal Actions, First Principles: Cross-Cutting Considerations for Family Caregiver Support
Date: 09/2022
Sponsoring organization: Administration for Community Living
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Report details and defines a national support strategy for family caregivers of all ages. Highlights strategies for caring for children, elderly adults, people with disabilities, people with chronic conditions, and post-acute conditions, among others. Also, discusses recommendations for caregivers residing in rural areas.
Additional links: Actions for States, Communities, and Others, Federal Actions, First Principles: Cross-Cutting Considerations for Family Caregiver Support
Date: 09/2022
Sponsoring organization: Administration for Community Living
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