Rural Health
Resources by Topic: Informal caregivers
Financial Health and Well-Being of Rural Female Caregivers of Older Adults with Chronic Illnesses
Examines the financial burdens of female caregivers living in rural areas. Provides interview feedback from 20 women caring for older adults with chronic illnesses, focusing on themes such as gender role imbalances, financial pressures, stress, time constraints, and more.
Author(s): Nasreen Lalani, Evans Appiah Osei, Siqi Yang, Bhagyashree Katare, Sampada Wagle
Citation: BMC Geriatrics, 25, 239
Date: 04/2025
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Examines the financial burdens of female caregivers living in rural areas. Provides interview feedback from 20 women caring for older adults with chronic illnesses, focusing on themes such as gender role imbalances, financial pressures, stress, time constraints, and more.
Author(s): Nasreen Lalani, Evans Appiah Osei, Siqi Yang, Bhagyashree Katare, Sampada Wagle
Citation: BMC Geriatrics, 25, 239
Date: 04/2025
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Strategies and Interventions to Strengthen Support for Family Caregivers for Individuals with Serious Illness or Disability: Proceedings of a Workshop - In Brief
Summarizes a workshop discussing issues related to caregiving including successful interventions and strategies addressing burdens placed on caregivers, the needs of specific caregiver populations, how to scale successful programs, and policies for supporting caregivers. Discuses rural specific caregiving challenges.
Additional links: Read Online
Date: 2025
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Summarizes a workshop discussing issues related to caregiving including successful interventions and strategies addressing burdens placed on caregivers, the needs of specific caregiver populations, how to scale successful programs, and policies for supporting caregivers. Discuses rural specific caregiving challenges.
Additional links: Read Online
Date: 2025
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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In Support of Caregivers: Key Accomplishments of Lifespan Respite Program Grantees
Highlights the work of state grantees in the Lifespan Respite Care Program. Discusses 8 key accomplishments related to collaboration, accessibility, affordability, using data, workforce, innovation, sustainability, and outreach. Discusses rural throughout.
Author(s): Susan Janko Summers
Date: 2025
Sponsoring organization: ARCH National Respite Network and Resource Center
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Highlights the work of state grantees in the Lifespan Respite Care Program. Discusses 8 key accomplishments related to collaboration, accessibility, affordability, using data, workforce, innovation, sustainability, and outreach. Discusses rural throughout.
Author(s): Susan Janko Summers
Date: 2025
Sponsoring organization: ARCH National Respite Network and Resource Center
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Rural American Hospice Insights Report: Understanding the Needs of the Rural Family Caregiver
Presents findings from a survey of 400 rural family caregivers regarding their knowledge and perceptions of hospice care. Covers respondents' demographics, communication and learning preferences, awareness of and beliefs about hospice, priorities regarding hospice care, and more. Requires name, organization information, and email address to download.
Date: 12/2024
Sponsoring organizations: National Alliance for Care at Home, Transcend Strategy Group
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Presents findings from a survey of 400 rural family caregivers regarding their knowledge and perceptions of hospice care. Covers respondents' demographics, communication and learning preferences, awareness of and beliefs about hospice, priorities regarding hospice care, and more. Requires name, organization information, and email address to download.
Date: 12/2024
Sponsoring organizations: National Alliance for Care at Home, Transcend Strategy Group
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Caring for Pennsylvanians with Dementia and Related Disorders: An Analysis of Needs and Capacity in Rural Areas, 2024 to 2034
Examines potential demand for care of people living with Alzheimer's disease or a related disorder (ADRD) in rural Pennsylvania. Features county-level maps showing numbers of various types of care facilities and their capacity, and statistics including projections of the population aged 65+ and rate of increase from 2020 to 2040, age-adjusted mortality rate from ADRD, projections of number of ADRD cases by 2040, and impact of smoking and obesity on ADRD, with breakdowns by county.
Author(s): Dara P. Bourassa, Sara A. Grove
Date: 12/2024
Sponsoring organization: Center for Rural Pennsylvania
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Examines potential demand for care of people living with Alzheimer's disease or a related disorder (ADRD) in rural Pennsylvania. Features county-level maps showing numbers of various types of care facilities and their capacity, and statistics including projections of the population aged 65+ and rate of increase from 2020 to 2040, age-adjusted mortality rate from ADRD, projections of number of ADRD cases by 2040, and impact of smoking and obesity on ADRD, with breakdowns by county.
Author(s): Dara P. Bourassa, Sara A. Grove
Date: 12/2024
Sponsoring organization: Center for Rural Pennsylvania
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An Aging America: Priorities and Policy Innovations
Presents themes that emerged during the National Academy of State Health Policy's 2024 pre-conference on aging. Highlights examples of innovative approaches in New York and North Dakota, as well as federal aging initiatives that support states.
Date: 11/2024
Sponsoring organization: National Academy for State Health Policy
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Presents themes that emerged during the National Academy of State Health Policy's 2024 pre-conference on aging. Highlights examples of innovative approaches in New York and North Dakota, as well as federal aging initiatives that support states.
Date: 11/2024
Sponsoring organization: National Academy for State Health Policy
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Transitional Palliative Care for Family Caregivers: Outcomes From a Randomized Controlled Trial
Examines the influence of mentoring from a palliative care nurse on family caregivers in rural and other areas of three states. Analyzes adult caregivers from 2018-2022 after their care recipient who utilized inpatient palliative care was discharged from the hospital. Compares a control group who received only monthly phone calls with an intervention group who received teaching, guidance, and counseling. Discusses importance of both caregiver support and patient wellness.
Author(s): Joan M. Griffin, Jay N. Mandrekar, Catherine E. Vanderboom, et al.
Citation: Journal of Pain and Symptom Management, 68(5), 456-466
Date: 11/2024
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Examines the influence of mentoring from a palliative care nurse on family caregivers in rural and other areas of three states. Analyzes adult caregivers from 2018-2022 after their care recipient who utilized inpatient palliative care was discharged from the hospital. Compares a control group who received only monthly phone calls with an intervention group who received teaching, guidance, and counseling. Discusses importance of both caregiver support and patient wellness.
Author(s): Joan M. Griffin, Jay N. Mandrekar, Catherine E. Vanderboom, et al.
Citation: Journal of Pain and Symptom Management, 68(5), 456-466
Date: 11/2024
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The Friends and Family for Mental Health Program: A Pilot Study of a Cognitive Behavioral Therapy Skills Intervention for Rural Adults
Pilot study on the Friends and Family for Mental Health Program, a cognitive behavioral therapy (CBT) skills program for informal caregivers in rural communities. Provides data on 37 Ohioans' change in informal care skills and psychological well-being while participating in the program. Discusses informal care models and examines barriers to mental health services in rural areas.
Author(s): Samuel T. Murphy, Jennifer S. Cheavens, Daniel R. Strunk
Citation: Rural and Remote Health, 24(4), 9066
Date: 10/2024
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Pilot study on the Friends and Family for Mental Health Program, a cognitive behavioral therapy (CBT) skills program for informal caregivers in rural communities. Provides data on 37 Ohioans' change in informal care skills and psychological well-being while participating in the program. Discusses informal care models and examines barriers to mental health services in rural areas.
Author(s): Samuel T. Murphy, Jennifer S. Cheavens, Daniel R. Strunk
Citation: Rural and Remote Health, 24(4), 9066
Date: 10/2024
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Rural-Urban and Regional Variations in Aspects of Caregiving, Support Services and Caregiver Health in the USA: Evidence from a National Survey
Examines geographical differences in caregiving intensity, burden, health, and support based on U.S. region and rural versus urban location. Utilizes data from 3,551 informal caregivers part of the National Study of Caregiving and provides rural versus urban breakdowns of demographic information, active daily living (ADL) needs, caregiving characteristics, and more.
Author(s): Steven A. Cohen, Neelam H. Ahmed, Kerri A. Ellis, et al.
Citation: BMJ Open, 14(10)
Date: 10/2024
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Examines geographical differences in caregiving intensity, burden, health, and support based on U.S. region and rural versus urban location. Utilizes data from 3,551 informal caregivers part of the National Study of Caregiving and provides rural versus urban breakdowns of demographic information, active daily living (ADL) needs, caregiving characteristics, and more.
Author(s): Steven A. Cohen, Neelam H. Ahmed, Kerri A. Ellis, et al.
Citation: BMJ Open, 14(10)
Date: 10/2024
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America's Military and Veteran Caregivers: Hidden Heroes Emerging from the Shadows
Offers a profile of caregivers for military members and veterans. Discusses demographic, physical and mental health, geography, costs, support systems, and more. Includes recommendations for healthcare access, policy, and research based on report findings. Discusses rural throughout and includes an analysis on the differences between rural and urban caregiving in Chapter 7.
Author(s): Rajeev Ramchand, Sarah Dalton, Tamara Dubowitz, et al.
Date: 09/2024
Sponsoring organization: RAND Corporation
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Offers a profile of caregivers for military members and veterans. Discusses demographic, physical and mental health, geography, costs, support systems, and more. Includes recommendations for healthcare access, policy, and research based on report findings. Discusses rural throughout and includes an analysis on the differences between rural and urban caregiving in Chapter 7.
Author(s): Rajeev Ramchand, Sarah Dalton, Tamara Dubowitz, et al.
Date: 09/2024
Sponsoring organization: RAND Corporation
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