Rural Health
Resources by Topic: Informal caregivers
Addressing the Shortage of Direct Care Workers: Insights from Seven States
Brief assessing efforts for strengthening and identifying federal policy opportunities related to the direct care workforce through interviews with 20 stakeholders in 7 states. Discusses federal funding, collaboration, workforce pipelines, equity, credentials, training, family caregivers, and home- and community-based services. Discusses rural throughout.
Author(s): Barbara Lyons, Molly O'Malley Watts
Date: 03/2024
Sponsoring organization: Commonwealth Fund
view details
Brief assessing efforts for strengthening and identifying federal policy opportunities related to the direct care workforce through interviews with 20 stakeholders in 7 states. Discusses federal funding, collaboration, workforce pipelines, equity, credentials, training, family caregivers, and home- and community-based services. Discusses rural throughout.
Author(s): Barbara Lyons, Molly O'Malley Watts
Date: 03/2024
Sponsoring organization: Commonwealth Fund
view details
Aging Our Way, PA: A Plan for Lifelong Independence
Draft of a master plan for aging (MPA) for Pennsylvania. Highlights 5 priorities areas and their associated strategies and tactics related to access to services, aging in place, independence, caregiving, and awareness building. Includes rural throughout.
Date: 02/2024
Sponsoring organization: Pennsylvania Department of Aging
view details
Draft of a master plan for aging (MPA) for Pennsylvania. Highlights 5 priorities areas and their associated strategies and tactics related to access to services, aging in place, independence, caregiving, and awareness building. Includes rural throughout.
Date: 02/2024
Sponsoring organization: Pennsylvania Department of Aging
view details
Behavioral Health Services Outcomes That Matter Most to Caregivers of Children, Youth, and Young Adults with Mental Health Needs
Used focus groups that included rural caregivers of children with behavioral health needs to identify behavioral health service outcomes valued by caregivers. Discusses access to care, service delivery, provider communication, caregiver training, stigma, caregiver wellness, and more. Discusses rural issues throughout.
Author(s): Genevieve Graaf, Katherine Kitchens, Millie Sweeney, Kathleen C. Thomas
Citation: International Journal of Environmental Research and Public Health, 21(2), 172
Date: 02/2024
view details
Used focus groups that included rural caregivers of children with behavioral health needs to identify behavioral health service outcomes valued by caregivers. Discusses access to care, service delivery, provider communication, caregiver training, stigma, caregiver wellness, and more. Discusses rural issues throughout.
Author(s): Genevieve Graaf, Katherine Kitchens, Millie Sweeney, Kathleen C. Thomas
Citation: International Journal of Environmental Research and Public Health, 21(2), 172
Date: 02/2024
view details
Caregiving Across the Life Course in Rural and Urban Households in the North Central Region
A recorded webinar that discusses the NCR-Stat: Caregiving Across the Life Course Survey dataset that focuses on child, adult, and elder caregiving. Survey dataset explores how caregiving impacts economic development in rural and urban communities in the North Central Region. Transcript available below description.
Author(s): Zuzana Bednarik, Shoshanah Inwood, Florence Becot
Date: 02/2024
Sponsoring organization: North Central Regional Center for Rural Development
view details
A recorded webinar that discusses the NCR-Stat: Caregiving Across the Life Course Survey dataset that focuses on child, adult, and elder caregiving. Survey dataset explores how caregiving impacts economic development in rural and urban communities in the North Central Region. Transcript available below description.
Author(s): Zuzana Bednarik, Shoshanah Inwood, Florence Becot
Date: 02/2024
Sponsoring organization: North Central Regional Center for Rural Development
view details
Supporting People with Disabilities in Rural Communities, with Rayna Sage and Catherine Ipsen
An episode of the Exploring Rural Health podcast featuring Rayna Sage, PhD, and Catherine Ipsen, PhD, co-directors of the Research and Training Center on Disability in Rural Communities at the University of Montana. Focuses on the challenges facing rural people with disabilities and services and support systems that enable them to achieve and maintain quality of life.
Date: 01/2024
Sponsoring organization: Rural Health Information Hub
view details
An episode of the Exploring Rural Health podcast featuring Rayna Sage, PhD, and Catherine Ipsen, PhD, co-directors of the Research and Training Center on Disability in Rural Communities at the University of Montana. Focuses on the challenges facing rural people with disabilities and services and support systems that enable them to achieve and maintain quality of life.
Date: 01/2024
Sponsoring organization: Rural Health Information Hub
view details
Compendium of Best Practices for Rural Age-Friendly Care
Offers best practices, models of care, policies, and more related to offering age-friendly care in rural settings. Covers care coordination, caregiving support, behavioral health, community programming, community health workers, the 4Ms, and state-level priorities.
Date: 2024
Sponsoring organizations: National Rural Health Association, The John A. Hartford Foundation
view details
Offers best practices, models of care, policies, and more related to offering age-friendly care in rural settings. Covers care coordination, caregiving support, behavioral health, community programming, community health workers, the 4Ms, and state-level priorities.
Date: 2024
Sponsoring organizations: National Rural Health Association, The John A. Hartford Foundation
view details
2024 Chartbook: Supporting Native Elders in Their Communities: Title VI Native American Aging Programs and Services
Offers findings from the 2023 Title VI Native American Aging Program Survey. Discusses service provision, nutrition and traditional foods, services and supports for caregivers, transportation, elder abuse, program staffing and funding, and partnerships.
Date: 2024
Sponsoring organization: USAging
view details
Offers findings from the 2023 Title VI Native American Aging Program Survey. Discusses service provision, nutrition and traditional foods, services and supports for caregivers, transportation, elder abuse, program staffing and funding, and partnerships.
Date: 2024
Sponsoring organization: USAging
view details
2024 Alzheimer's Disease Facts and Figures
Provides an overview of Alzheimer's disease in the United States, including prevalence, mortality and morbidity, and issues related to caregivers of persons with Alzheimer's. Includes discussions about challenges of the disease for patients, providers, and caregivers in rural areas.
Author(s): Joseph Gaugler, Bryan James, Tricia Johnson, et al.
Date: 2024
Sponsoring organization: Alzheimer's Association
view details
Provides an overview of Alzheimer's disease in the United States, including prevalence, mortality and morbidity, and issues related to caregivers of persons with Alzheimer's. Includes discussions about challenges of the disease for patients, providers, and caregivers in rural areas.
Author(s): Joseph Gaugler, Bryan James, Tricia Johnson, et al.
Date: 2024
Sponsoring organization: Alzheimer's Association
view details
Sociodemographic Differences in COVID-19 Pandemic Experiences Among Families in the United States
Examines challenges experienced by individuals during the COVID-19 pandemic according to sociodemographic differences. Analyzes survey data focused on children and caregivers and their experiences with infection and testing, healthcare, school, access to food, child care and work, financial concerns, and more. Data is broken down by demographic variables such as caregiver education, age of children, and rural versus urban location.
Author(s): Kaja Z. LeWinn, Leonardo Trasande, Andrew Law, et al.
Citation: JAMA Network Open, 6(8)
Date: 08/2023
view details
Examines challenges experienced by individuals during the COVID-19 pandemic according to sociodemographic differences. Analyzes survey data focused on children and caregivers and their experiences with infection and testing, healthcare, school, access to food, child care and work, financial concerns, and more. Data is broken down by demographic variables such as caregiver education, age of children, and rural versus urban location.
Author(s): Kaja Z. LeWinn, Leonardo Trasande, Andrew Law, et al.
Citation: JAMA Network Open, 6(8)
Date: 08/2023
view details
Exploring the Other Side of Alzheimer's Disease and Related Dementia: Informal Caregivers
Provides national data on Alzheimer's Disease and Related Dementia (ADRD) informal caregivers. Includes information on metro versus nonmetro caregiver relationship to patient, sex, age, education, marital status, types of caregiving, and amount of time caregiving, utilizing data from the National Health and Aging Trends Study.
Author(s): Adee Athiyaman
Date: 08/2023
Sponsoring organization: Illinois Institute for Rural Affairs
view details
Provides national data on Alzheimer's Disease and Related Dementia (ADRD) informal caregivers. Includes information on metro versus nonmetro caregiver relationship to patient, sex, age, education, marital status, types of caregiving, and amount of time caregiving, utilizing data from the National Health and Aging Trends Study.
Author(s): Adee Athiyaman
Date: 08/2023
Sponsoring organization: Illinois Institute for Rural Affairs
view details