Rural Health
Resources by Topic: Informal caregivers
Transportation: The Missing Link in Family Caregiver Support
Provides information on transportation services the professional or family caregivers of people with disabilities or aging-related challenges. See pages 8-9 for discussion of rural-specific challenges and strategies.
Date: 04/2025
Sponsoring organizations: ARCH National Respite Network and Resource Center, National Aging and Disability Transportation Center
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Provides information on transportation services the professional or family caregivers of people with disabilities or aging-related challenges. See pages 8-9 for discussion of rural-specific challenges and strategies.
Date: 04/2025
Sponsoring organizations: ARCH National Respite Network and Resource Center, National Aging and Disability Transportation Center
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Financial Health and Well-Being of Rural Female Caregivers of Older Adults with Chronic Illnesses
Examines the financial burdens of female caregivers living in rural areas. Provides interview feedback from 20 women caring for older adults with chronic illnesses, focusing on themes such as gender role imbalances, financial pressures, stress, time constraints, and more.
Author(s): Nasreen Lalani, Evans Appiah Osei, Siqi Yang, Bhagyashree Katare, Sampada Wagle
Citation: BMC Geriatrics, 25, 239
Date: 04/2025
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Examines the financial burdens of female caregivers living in rural areas. Provides interview feedback from 20 women caring for older adults with chronic illnesses, focusing on themes such as gender role imbalances, financial pressures, stress, time constraints, and more.
Author(s): Nasreen Lalani, Evans Appiah Osei, Siqi Yang, Bhagyashree Katare, Sampada Wagle
Citation: BMC Geriatrics, 25, 239
Date: 04/2025
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Strategies and Interventions to Strengthen Support for Family Caregivers for Individuals with Serious Illness or Disability: Proceedings of a Workshop - In Brief
Summarizes a workshop discussing issues related to caregiving including successful interventions and strategies addressing burdens placed on caregivers, the needs of specific caregiver populations, how to scale successful programs, and policies for supporting caregivers. Discuses rural specific caregiving challenges.
Additional links: Read Online
Date: 2025
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Summarizes a workshop discussing issues related to caregiving including successful interventions and strategies addressing burdens placed on caregivers, the needs of specific caregiver populations, how to scale successful programs, and policies for supporting caregivers. Discuses rural specific caregiving challenges.
Additional links: Read Online
Date: 2025
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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In Support of Caregivers: Key Accomplishments of Lifespan Respite Program Grantees
Highlights the work of state grantees in the Lifespan Respite Care Program. Discusses 8 key accomplishments related to collaboration, accessibility, affordability, using data, workforce, innovation, sustainability, and outreach. Discusses rural throughout.
Author(s): Susan Janko Summers
Date: 2025
Sponsoring organization: ARCH National Respite Network and Resource Center
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Highlights the work of state grantees in the Lifespan Respite Care Program. Discusses 8 key accomplishments related to collaboration, accessibility, affordability, using data, workforce, innovation, sustainability, and outreach. Discusses rural throughout.
Author(s): Susan Janko Summers
Date: 2025
Sponsoring organization: ARCH National Respite Network and Resource Center
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2025 Alzheimer's Disease Facts and Figures
Provides an overview of Alzheimer's disease in the United States, including prevalence, mortality and morbidity, and the roles and experiences of paid and informal caregivers. Includes discussion of Alzheimer's disease prevalence and access to services in rural areas.
Date: 2025
Sponsoring organization: Alzheimer's Association
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Provides an overview of Alzheimer's disease in the United States, including prevalence, mortality and morbidity, and the roles and experiences of paid and informal caregivers. Includes discussion of Alzheimer's disease prevalence and access to services in rural areas.
Date: 2025
Sponsoring organization: Alzheimer's Association
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Rural American Hospice Insights Report: Understanding the Needs of the Rural Family Caregiver
Presents findings from a survey of 400 rural family caregivers regarding their knowledge and perceptions of hospice care. Covers respondents' demographics, communication and learning preferences, awareness of and beliefs about hospice, priorities regarding hospice care, and more. Requires name, organization information, and email address to download.
Date: 12/2024
Sponsoring organizations: National Alliance for Care at Home, Transcend Strategy Group
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Presents findings from a survey of 400 rural family caregivers regarding their knowledge and perceptions of hospice care. Covers respondents' demographics, communication and learning preferences, awareness of and beliefs about hospice, priorities regarding hospice care, and more. Requires name, organization information, and email address to download.
Date: 12/2024
Sponsoring organizations: National Alliance for Care at Home, Transcend Strategy Group
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Caring for Pennsylvanians with Dementia and Related Disorders: An Analysis of Needs and Capacity in Rural Areas, 2024 to 2034
Examines potential demand for care of people living with Alzheimer's disease or a related disorder (ADRD) in rural Pennsylvania. Features county-level maps showing numbers of various types of care facilities and their capacity, and statistics including projections of the population aged 65+ and rate of increase from 2020 to 2040, age-adjusted mortality rate from ADRD, projections of number of ADRD cases by 2040, and impact of smoking and obesity on ADRD, with breakdowns by county.
Author(s): Dara P. Bourassa, Sara A. Grove
Date: 12/2024
Sponsoring organization: Center for Rural Pennsylvania
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Examines potential demand for care of people living with Alzheimer's disease or a related disorder (ADRD) in rural Pennsylvania. Features county-level maps showing numbers of various types of care facilities and their capacity, and statistics including projections of the population aged 65+ and rate of increase from 2020 to 2040, age-adjusted mortality rate from ADRD, projections of number of ADRD cases by 2040, and impact of smoking and obesity on ADRD, with breakdowns by county.
Author(s): Dara P. Bourassa, Sara A. Grove
Date: 12/2024
Sponsoring organization: Center for Rural Pennsylvania
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An Aging America: Priorities and Policy Innovations
Presents themes that emerged during the National Academy of State Health Policy's 2024 pre-conference on aging. Highlights examples of innovative approaches in New York and North Dakota, as well as federal aging initiatives that support states.
Date: 11/2024
Sponsoring organization: National Academy for State Health Policy
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Presents themes that emerged during the National Academy of State Health Policy's 2024 pre-conference on aging. Highlights examples of innovative approaches in New York and North Dakota, as well as federal aging initiatives that support states.
Date: 11/2024
Sponsoring organization: National Academy for State Health Policy
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Transitional Palliative Care for Family Caregivers: Outcomes From a Randomized Controlled Trial
Examines the influence of mentoring from a palliative care nurse on family caregivers in rural and other areas of three states. Analyzes adult caregivers from 2018-2022 after their care recipient who utilized inpatient palliative care was discharged from the hospital. Compares a control group who received only monthly phone calls with an intervention group who received teaching, guidance, and counseling. Discusses importance of both caregiver support and patient wellness.
Author(s): Joan M. Griffin, Jay N. Mandrekar, Catherine E. Vanderboom, et al.
Citation: Journal of Pain and Symptom Management, 68(5), 456-466
Date: 11/2024
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Examines the influence of mentoring from a palliative care nurse on family caregivers in rural and other areas of three states. Analyzes adult caregivers from 2018-2022 after their care recipient who utilized inpatient palliative care was discharged from the hospital. Compares a control group who received only monthly phone calls with an intervention group who received teaching, guidance, and counseling. Discusses importance of both caregiver support and patient wellness.
Author(s): Joan M. Griffin, Jay N. Mandrekar, Catherine E. Vanderboom, et al.
Citation: Journal of Pain and Symptom Management, 68(5), 456-466
Date: 11/2024
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Provider Perspectives on Healthcare System Barriers to Engaging Caregivers of Rural US Veterans in Firearm Suicide Prevention
Discusses the relationship between secure firearm storage and a decreased risk of firearm related suicide, especially among veterans. Explores the potential of providers in the VA to engage caregivers on methods of secure firearm storage and firearm suicide prevention.
Author(s): Claire Houtsma, Katherine MacWilliams, Sarah Pardue-Bourgeois, et al.
Citation: Journal of General Internal Medicine, 40, 3675-3683
Date: 10/2024
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Discusses the relationship between secure firearm storage and a decreased risk of firearm related suicide, especially among veterans. Explores the potential of providers in the VA to engage caregivers on methods of secure firearm storage and firearm suicide prevention.
Author(s): Claire Houtsma, Katherine MacWilliams, Sarah Pardue-Bourgeois, et al.
Citation: Journal of General Internal Medicine, 40, 3675-3683
Date: 10/2024
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