Rural Health
Resources by Topic: Informal caregivers
Palliative Care Needs and Preferences of Older Adults with Advanced or Serious Chronic Illnesses and their Families in Rural Communities of Indiana, USA
Presents the experiences of caregivers in rural Indiana related to palliative care, the needs of older adults with chronic illnesses, and the impacts on their families. Discusses themes such as managing pain, caregiver trust, distance and access to care, managing difficult conversations, caregiver burden, and use of telehealth in rural areas.
Author(s): Nasreen Lalani, Kawther Hamash, Yitong Wang
Citation: Journal of Rural Health, 40(2), 368-375
Date: 08/2023
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Presents the experiences of caregivers in rural Indiana related to palliative care, the needs of older adults with chronic illnesses, and the impacts on their families. Discusses themes such as managing pain, caregiver trust, distance and access to care, managing difficult conversations, caregiver burden, and use of telehealth in rural areas.
Author(s): Nasreen Lalani, Kawther Hamash, Yitong Wang
Citation: Journal of Rural Health, 40(2), 368-375
Date: 08/2023
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Arkansas State Plan on Aging: Fiscal Years 2024-2027
Provides direction for long-term care efforts in the state of Arkansas. Focuses on implementation of the Older American Act (OAA), COVID-19 recovery, equity, access to home and community-based services, and caregiving infrastructure. Highlights population data on rural Arkansas citizens and rural-specific priorities.
Date: 06/2023
Sponsoring organization: Arkansas Department of Human Services
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Provides direction for long-term care efforts in the state of Arkansas. Focuses on implementation of the Older American Act (OAA), COVID-19 recovery, equity, access to home and community-based services, and caregiving infrastructure. Highlights population data on rural Arkansas citizens and rural-specific priorities.
Date: 06/2023
Sponsoring organization: Arkansas Department of Human Services
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Perceived Benefits of Geriatric Specialty Telemedicine among Rural Patients and Caregivers
Explores the perceived benefits of a Veterans Health Administration (VHA) geriatric specialty telemedicine service (GRECC Connect), which connects geriatric interdisciplinary teams in urban areas with older veterans in rural areas through videoconferencing platforms. Summarizes results of interviews 30 rural older adults enrolled in the VHA and their caregivers about the content and quality of their GRECC Connect visits.
Author(s): Eileen M. Dryden, Meaghan A. Kennedy, Jennifer Conti, et al.
Citation: Health Services Research, 58(Suppl 1), 26-35
Date: 02/2023
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Explores the perceived benefits of a Veterans Health Administration (VHA) geriatric specialty telemedicine service (GRECC Connect), which connects geriatric interdisciplinary teams in urban areas with older veterans in rural areas through videoconferencing platforms. Summarizes results of interviews 30 rural older adults enrolled in the VHA and their caregivers about the content and quality of their GRECC Connect visits.
Author(s): Eileen M. Dryden, Meaghan A. Kennedy, Jennifer Conti, et al.
Citation: Health Services Research, 58(Suppl 1), 26-35
Date: 02/2023
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Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) Meeting Minutes, January 19-20, 2023
Summarizes the Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) meeting held on January 19-20, 2023. Includes presentations and discussions on the Administration for Community Living (ACL) and the National Caregiver Strategy, age-friendly public health systems, the Area Health Education Centers (AHEC) Program, and Title VII mental and behavioral health education and training programs. Includes rural references throughout.
Date: 01/2023
Sponsoring organization: Advisory Committee on Interdisciplinary Community-Based Linkages
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Summarizes the Advisory Committee on Interdisciplinary, Community-Based Linkages (ACICBL) meeting held on January 19-20, 2023. Includes presentations and discussions on the Administration for Community Living (ACL) and the National Caregiver Strategy, age-friendly public health systems, the Area Health Education Centers (AHEC) Program, and Title VII mental and behavioral health education and training programs. Includes rural references throughout.
Date: 01/2023
Sponsoring organization: Advisory Committee on Interdisciplinary Community-Based Linkages
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2022 National Strategy to Support Family Caregivers
Report details and defines a national support strategy for family caregivers of all ages. Highlights strategies for caring for children, elderly adults, people with disabilities, people with chronic conditions, and post-acute conditions, among others. Also, discusses recommendations for caregivers residing in rural areas.
Additional links: Actions for States, Communities, and Others, Federal Actions, First Principles: Cross-Cutting Considerations for Family Caregiver Support
Date: 09/2022
Sponsoring organization: Administration for Community Living
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Report details and defines a national support strategy for family caregivers of all ages. Highlights strategies for caring for children, elderly adults, people with disabilities, people with chronic conditions, and post-acute conditions, among others. Also, discusses recommendations for caregivers residing in rural areas.
Additional links: Actions for States, Communities, and Others, Federal Actions, First Principles: Cross-Cutting Considerations for Family Caregiver Support
Date: 09/2022
Sponsoring organization: Administration for Community Living
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Family Caregiving for People with Cancer and Other Serious Illnesses: Proceedings of a Workshop
Reports on a May 2022 workshop exploring issues related to family caregivers and developing strategies to support and recognize their role in caring for their loved ones with cancer or other chronic illnesses. Discusses the increased role of family caregivers in rural and tribal communities and the importance of providing services, addressing social determinants of health, and allocating funding to better support family caregivers in these communities.
Additional links: Read Online
Author(s): Board on Health Care Services
Date: 05/2022
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Reports on a May 2022 workshop exploring issues related to family caregivers and developing strategies to support and recognize their role in caring for their loved ones with cancer or other chronic illnesses. Discusses the increased role of family caregivers in rural and tribal communities and the importance of providing services, addressing social determinants of health, and allocating funding to better support family caregivers in these communities.
Additional links: Read Online
Author(s): Board on Health Care Services
Date: 05/2022
Sponsoring organization: Health and Medicine Division (HMD), National Academies of Sciences, Engineering, and Medicine
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Differences in Distress Between Rural and Non-rural Appalachian Breast Cancer Patient / Caregiver Dyads During the First Year of Treatment
Results of a pilot study measuring self-reported anxiety, depression, and caregiver strain among 48 Appalachian breast cancer patients and their caregivers, as identified by the University of Tennessee Medical Center from 2019-2020. Features demographics and statistics on types of psychological distress at baseline, 6-week, 6-month, and 12-month time frames, with breakdowns by rural or nonrural location.
Author(s): Jordan Tasman, Callie D. McAdams, Jillian Lloyd, Ashton J. Brooks, Patricia Nola Eugene Roberson
Citation: Journal of Appalachian Health, 4(3), 56-70
Date: 03/2022
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Results of a pilot study measuring self-reported anxiety, depression, and caregiver strain among 48 Appalachian breast cancer patients and their caregivers, as identified by the University of Tennessee Medical Center from 2019-2020. Features demographics and statistics on types of psychological distress at baseline, 6-week, 6-month, and 12-month time frames, with breakdowns by rural or nonrural location.
Author(s): Jordan Tasman, Callie D. McAdams, Jillian Lloyd, Ashton J. Brooks, Patricia Nola Eugene Roberson
Citation: Journal of Appalachian Health, 4(3), 56-70
Date: 03/2022
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What We Know (and Don't Know) About Caregiving in Rural America
Webinar offering an overview of informal caregiving for rural residents. Describes the tasks associated with caregiving, rural caregiving data and available research, mental health, cancer related caregiving, and rural and urban comparisons. Includes North Carolina-based caregiving projects. Transcript available in the video description.
Date: 02/2022
Sponsoring organization: North Carolina Rural Health Research Program
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Webinar offering an overview of informal caregiving for rural residents. Describes the tasks associated with caregiving, rural caregiving data and available research, mental health, cancer related caregiving, and rural and urban comparisons. Includes North Carolina-based caregiving projects. Transcript available in the video description.
Date: 02/2022
Sponsoring organization: North Carolina Rural Health Research Program
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State Summaries of Lifespan Respite Grant Activities and Outcomes: Final Reports, FY2017 – FY2018 Grantees
Summaries of final reports from the fiscal year 2017 and 2018 Administration for Community Living (ACL) State Lifespan Respite Care program grantees. The State Lifespan Respite Care program aims to create coordinated systems of accessible, community-based respite care services for family caregivers of children and adults of all ages with special needs. Describes each of the project's outcomes, accomplishments, and partnerships. Highlights programs serving rural areas.
Date: 2022
Sponsoring organization: ARCH National Respite Network and Resource Center
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Summaries of final reports from the fiscal year 2017 and 2018 Administration for Community Living (ACL) State Lifespan Respite Care program grantees. The State Lifespan Respite Care program aims to create coordinated systems of accessible, community-based respite care services for family caregivers of children and adults of all ages with special needs. Describes each of the project's outcomes, accomplishments, and partnerships. Highlights programs serving rural areas.
Date: 2022
Sponsoring organization: ARCH National Respite Network and Resource Center
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Rural Wisconsin Caregiver Resources Toolkit 2022
Compendium of resources intended to help caregivers find the information they need to perform their caregiving roles effectively. Includes resources to help caregivers perform medical and nursing tasks, resources relating to advance directives and power of attorney, links to a broad range of Wisconsin and national caregiver resources, and resources intended to help caregivers address their own health and well-being.
Date: 2022
Sponsoring organization: Rural Wisconsin Health Cooperative
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Compendium of resources intended to help caregivers find the information they need to perform their caregiving roles effectively. Includes resources to help caregivers perform medical and nursing tasks, resources relating to advance directives and power of attorney, links to a broad range of Wisconsin and national caregiver resources, and resources intended to help caregivers address their own health and well-being.
Date: 2022
Sponsoring organization: Rural Wisconsin Health Cooperative
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