Rural Health
Resources by Topic: Informal caregivers
Systematic Review of Palliative Care in the Rural Setting
Synthesizes the results of an extensive search of the medical literature focused on the developments in palliative care for patients living in rural areas in the U.S. and internationally to determine where gaps in the research may occur. Suggests promising approaches including telehealth, community-academic partnerships, and training for rural healthcare providers.
Author(s): Marie A. Bakitas, Ronit Elk, Meka Astin, et al.
Citation: Cancer Control, 22(4), 450-464
Date: 10/2015
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Synthesizes the results of an extensive search of the medical literature focused on the developments in palliative care for patients living in rural areas in the U.S. and internationally to determine where gaps in the research may occur. Suggests promising approaches including telehealth, community-academic partnerships, and training for rural healthcare providers.
Author(s): Marie A. Bakitas, Ronit Elk, Meka Astin, et al.
Citation: Cancer Control, 22(4), 450-464
Date: 10/2015
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Benefits of Early Versus Delayed Palliative Care to Informal Family Caregivers of Patients With Advanced Cancer: Outcomes From the ENABLE III Randomized Controlled Trial
Examines the effects of introducing early palliative care intervention in rural settings for family caregivers (CGs) of patients with advanced-stage cancer by comparing the ENABLE (Educate, Nurture, Advise Before Life Ends) model of early palliative care with the customary cancer care. Addresses the CGs needs and how meeting these needs would support problem solving, decision-making, and advance care planning.
Author(s): J. Nicholas Dionne-Odom, Andres Azuero, Kathleen D. Lyons, et al.
Citation: Journal of Clinical Oncology, 33(13), 1446-1452
Date: 05/2015
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Examines the effects of introducing early palliative care intervention in rural settings for family caregivers (CGs) of patients with advanced-stage cancer by comparing the ENABLE (Educate, Nurture, Advise Before Life Ends) model of early palliative care with the customary cancer care. Addresses the CGs needs and how meeting these needs would support problem solving, decision-making, and advance care planning.
Author(s): J. Nicholas Dionne-Odom, Andres Azuero, Kathleen D. Lyons, et al.
Citation: Journal of Clinical Oncology, 33(13), 1446-1452
Date: 05/2015
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Early Versus Delayed Initiation of Concurrent Palliative Oncology Care: Patient Outcomes in the ENABLE III Randomized Controlled Trial
Examines the effects of early versus delayed palliative care, the ENABLE (Educate, Nurture, Advise, Before Life Ends) model. ENABLE has shown to be an effective telehealth model particularly for patients with advanced stages of cancer and family caregivers in rural areas. Patient outcomes reported focused on quality of life, symptoms, temperament, survival rate, and hospital and clinical care use.
Author(s): Marie A. Bakitas, Tor D. Tosteson, Zhigang Li, et al.
Citation: Journal of Clinical Oncology, 33(13), 1438-1445
Date: 05/2015
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Examines the effects of early versus delayed palliative care, the ENABLE (Educate, Nurture, Advise, Before Life Ends) model. ENABLE has shown to be an effective telehealth model particularly for patients with advanced stages of cancer and family caregivers in rural areas. Patient outcomes reported focused on quality of life, symptoms, temperament, survival rate, and hospital and clinical care use.
Author(s): Marie A. Bakitas, Tor D. Tosteson, Zhigang Li, et al.
Citation: Journal of Clinical Oncology, 33(13), 1438-1445
Date: 05/2015
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Translating and Testing the ENABLE: CHF-PC Concurrent Palliative Care Model for Older Adults with Heart Failure and Their Family Caregivers
Reports on an evaluation study to determine the feasibility and satisfaction of converting a cancer-focused concurrent palliative care (PC) intervention into early PC for rural patients with a diagnosis of heart failure.
Author(s): J. Nicholas Dionne-Odom, Alan Kono, Jennifer Frost, et al.
Citation: Journal of Palliative Medicine, 17(9), 995-1004
Date: 09/2014
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Reports on an evaluation study to determine the feasibility and satisfaction of converting a cancer-focused concurrent palliative care (PC) intervention into early PC for rural patients with a diagnosis of heart failure.
Author(s): J. Nicholas Dionne-Odom, Alan Kono, Jennifer Frost, et al.
Citation: Journal of Palliative Medicine, 17(9), 995-1004
Date: 09/2014
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Respite for Rural Family Caregivers: Overcoming the Challenges
Discusses care recipients and their caregivers who live in rural and frontier areas. Offers suggestions to assist family caregivers, respite providers and administrators, and Lifespan Respite grantees in finding or developing respite resources.
Date: 10/2012
Sponsoring organization: ARCH National Respite Network and Resource Center
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Discusses care recipients and their caregivers who live in rural and frontier areas. Offers suggestions to assist family caregivers, respite providers and administrators, and Lifespan Respite grantees in finding or developing respite resources.
Date: 10/2012
Sponsoring organization: ARCH National Respite Network and Resource Center
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The 2006 Report to the Secretary: Rural Health and Human Service Issues
Report to the Secretary of the U.S. Department of Health and Human Services on issues related to rural America. Examines three key topics: access to pharmaceuticals and pharmacy services, health information technology, and family caregiver support of the rural elderly.
Date: 01/2006
Sponsoring organization: National Advisory Committee on Rural Health and Human Services
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Report to the Secretary of the U.S. Department of Health and Human Services on issues related to rural America. Examines three key topics: access to pharmaceuticals and pharmacy services, health information technology, and family caregiver support of the rural elderly.
Date: 01/2006
Sponsoring organization: National Advisory Committee on Rural Health and Human Services
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California MPA Data Dashboard for Aging
Offers interactive data indicating progress on the California Master Plan for Aging in the areas of housing, health, isolation, caregiving, and affordability. Includes rural and urban comparisons as well as county-level data.
Sponsoring organizations: California Department of Public Health, West Health
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Offers interactive data indicating progress on the California Master Plan for Aging in the areas of housing, health, isolation, caregiving, and affordability. Includes rural and urban comparisons as well as county-level data.
Sponsoring organizations: California Department of Public Health, West Health
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engAGED Social Engagement Innovations Hub
Collection of social engagement programs including description of program, outcomes, resources needed, program contact, and more. Can be filtered by intervention type, population served, organization type, and geographic population including rural, urban, suburban, and frontier.
Sponsoring organization: USAging
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Collection of social engagement programs including description of program, outcomes, resources needed, program contact, and more. Can be filtered by intervention type, population served, organization type, and geographic population including rural, urban, suburban, and frontier.
Sponsoring organization: USAging
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Services for Native Americans (OAA Title VI)
Lists the resources available under the U.S. Department of Health & Human Services' Administration on Aging (AoA) for Native Americans including services for nutrition, caregivers, elders, as well as grant opportunities.
Sponsoring organization: Administration for Community Living
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Lists the resources available under the U.S. Department of Health & Human Services' Administration on Aging (AoA) for Native Americans including services for nutrition, caregivers, elders, as well as grant opportunities.
Sponsoring organization: Administration for Community Living
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