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Resources by Topic: Informal caregivers

Psychosocial Predictors of Adverse Outcomes in Rural Heart Failure Caregivers
Results of a study of 114 rural and 426 urban caregivers in the southeastern United States, to examine whether social support, problem solving, and family function affected burden in caregivers of individuals with heart failure. Features demographic statistics and descriptive differences with breakdowns between urban and rural caregivers.
Author(s): Joan S. Grant, Lucinda J. Graven, Glenna Schluck, Laurie Abbott
Citation: Rural and Remote Health, 21(3), 6497
Date: 07/2021
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Remote Patient Monitoring Helps Rural Patients Recover at Home
Features Essentia Health's remote patient monitoring program, which allows patients to recover at home while still having access to medical attention. Describes how the program was used to treat COVID-19 patients, with plans to continue the program to treat other chronic diseases.
Author(s): Allee Mead
Citation: Rural Monitor
Date: 07/2021
Sponsoring organization: Rural Health Information Hub
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Preferences for Long-Term Care Arrangements among Rural and Urban Older Adults
Describes long-term care preferences of 4,333 older people with functional limitations. Features statistics on characteristics of respondents, with breakdowns by urban or rural location.
Author(s): Carrie Henning-Smith, John Mulcahy, Megan Lahr, Jill Tanem
Date: 05/2021
Sponsoring organization: University of Minnesota Rural Health Research Center
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Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers: A Way Forward
Examines the existing evidence on care interventions, services, and supports for people with dementia and their caregivers. Discusses gaps in the current evidence base and opportunities for future research. Describes interventions that can be implemented in a variety of settings to continue to expand the evidence base. Includes rural references and considerations throughout.
Additional links: Read Online
Date: 02/2021
Sponsoring organization: National Academies of Sciences, Engineering, and Medicine
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Reducing the Impact of Dementia in America: A Decadal Survey of the Behavioral and Social Sciences
Summarizes results of a survey of social and behavioral research on preventing or slowing the development of dementia and reducing its social and economic impact on dementia patients and caregivers. Offers recommendations on research priorities to improve the lives of those affected by dementia. Includes rural references throughout.
Additional links: Read Online
Date: 2021
Sponsoring organization: National Academies of Sciences, Engineering, and Medicine
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Challenges and Facilitators of Hospice Decision-making: A Retrospective Review of Family Caregivers of Home Hospice Patients in a Rural US-Mexico Border Region - A Qualitative Study
Highlights a study on hospice care utilization in the rural U.S.-Mexico border region of Southern California. Explores the decisions made by family care givers around hospice care and discusses the factors that shaped those decisions.
Author(s): Eunjeong Ko, Dahlia Fuentes, Savitri Singh-Carlson, Frances Nedjat-Haiem
Citation: BMJ Open, 10(7), e035634
Date: 07/2020
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Rural Caregivers: Identification of Informational Needs Through Telemedicine Questions
Explores the scope of dementia-related knowledge among attendees of a caregiving telemedicine program in rural Kentucky. Discusses the educational needs of participants regarding dementia as well as implications for the program and further research for similar programs.
Author(s): Shoshana H. Bardach, Allison Gibson, Kelly Parsons, April Stauffer, Gregory A. Jicha
Citation: Journal of Rural Health, 1-6
Date: 04/2020
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Informal Caregiving and Technology in Rural America
Highlights the challenges caregivers face in rural communities. Discusses how technology can offer potential solutions and identifies barriers to those solutions, such as broadband connectivity. Features Avera Health's eCare Senior Care, which provides a range of technology-assisted care services for assisted living and senior housing programs, as well as long-term care facilities.
Author(s): Tami Lichtenberg
Citation: Rural Monitor
Date: 01/2020
Sponsoring organization: Rural Health Information Hub
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Study Protocol of Coaching End-of-Life Palliative Care for Advanced Heart Failure Patients and Their Family Caregivers in Rural Appalachia: A Randomized Controlled Trial
Describes a clinical trial to study an end-of-life palliative care program for heart failure patients in rural West Virginia. Discusses the prevalence of heart failure in rural Appalachia and the need for palliative care training for family caregivers.
Author(s): Ubolrat Piamjariyakul, Trisha Petitte, Angel Smothers, et al.
Citation: BMC Palliative Care, 18, 119
Date: 12/2019
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Supportive Services and Caregiving for Older Rural Adults: Policy Brief and Recommendations to the Secretary
Provides an overview of current supportive services and caregiving policies for rural older adults, in terms of availability, accessibility, and acceptability of services. Explores topics including long-term services and supports, telehealth, care coordination, transportation, stigma, and unpaid caregivers, and describes federal programs for older adults. Offers policy recommendations and considerations.
Date: 08/2019
Sponsoring organization: National Advisory Committee on Rural Health and Human Services
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