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Rural People with Disabilities – Resources

Selected recent or important resources focusing on Rural People with Disabilities.

Enhancing Services for Deaf, Hard of Hearing, and Deafblind Patients in Rural America
Discusses the barriers to care that rural patients who are deaf, hard of hearing, or deafblind face, including lack of accommodations and inadequate clinician training. Features a Michigan clinic with American Sign Language-fluent staff, a New Jersey state division providing deaf sensitivity training, and a Colorado program that brings interpreters to rural communities.
Author(s): Allee Mead
Citation: Rural Monitor
Date: 10/2019
Type: Document
Sponsoring organization: Rural Health Information Hub
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ACA and Medicaid Expansion Associated with Increased Insurance Coverage for Rural Americans with Disabilities
Fact sheet exploring ways in which Affordable Care Act (ACA) policy changes and Medicaid expansion affected people with disabilities, especially those in rural areas. Features statistics including changes in insurance coverage for urban and rural people with and without disabilities from 2006-2017, and differences in coverage in Medicaid expansion or non-expansion states, with breakdowns by urban or rural locations.
Author(s): Research and Training Center on Disability in Rural Communities
Date: 09/2019
Type: Document
Sponsoring organization: University of Montana: Rural Institute for Inclusive Communities
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Select Maps on the Population 65 and Older in the United States by County: 2013-2017
Collection of maps showing county-level data on adults age 65 and older, with a focus on disability. Includes maps showing disability combined with living alone, widowhood, poverty status, and labor force participation.
Date: 08/2019
Type: Map/Mapping System
Sponsoring organization: U.S. Census Bureau
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Employment Disparity Grows for Rural Americans with Disability
Fact sheet showing changes in employment rates for people with and without disabilities in the 9 geographic divisions of the United States, using the American Community Survey 5-year estimates. Features breakdowns by metropolitan, micropolitan, and non-core counties.
Date: 01/2019
Type: Document
Sponsoring organization: University of Montana: Rural Institute for Inclusive Communities
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Engaging People with Disabilities: Strategies for Rural Health Departments
Discusses various methods for rural health departments to engage with people with disabilities. Highlights disparities for rural disabled people. Presents county-level map of rural disabled populations.
Date: 06/2018
Type: Document
Sponsoring organization: National Association of County and City Health Officials
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2017 Transportation Trends Topic Spotlight: Rural Travel Training
Presents a report on rural travel training programs. Discusses the challenges and opportunities rural elderly and disabled people face in navigating their communities. Features several examples of programs exhibiting best practices.
Date: 03/2018
Type: Document
Sponsoring organization: National Aging and Disability Transportation Center
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Population with Disabilities for Nonmetropolitan Counties
Printable map that shows the percent of population with disabilities nationwide by county. Data source: U.S. Census Bureau, American Community Survey (ACS) 5-Year Estimates, 2013-2017.
Date: 2018
Type: Map/Mapping System
Sponsoring organization: Rural Health Information Hub
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Priced Out: The Housing Crisis for People with Disabilities
Reports on a national rental housing study detailing the severity of the housing crisis experienced by low-income people with disabilities in metropolitan and nonmetropolitan statistical areas across the U.S. Particular focus is on non-elderly adults with disabilities who rely on Supplemental Security Income (SSI). Discusses how limited income and substandard housing places people with disabilities at greater risk of exacerbated chronic health conditions.
Author(s): Gina Schaak, Lisa Sloane, Francine Arienti, Andrew Zovistoski
Date: 12/2017
Type: Document
Sponsoring organizations: Consortium for Citizens with Disabilities, Technical Assistance Collaborative
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National Disability Policy: A Progress Report
Reports on the state of disability policy in key areas, examining the intersection between disability and poverty. Focuses on education, employment, financial assistance and incentives, healthcare, long-term services and supports, transportation, and housing, as factors enhancing economic independence among people with disabilities. Includes sections on barriers related to finding transportation and appropriate housing in rural areas.
Date: 10/2017
Type: Document
Sponsoring organization: National Council on Disability
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Medicare Fee-For-Service Beneficiaries with Disabilities, by End Stage Renal Disease Status, 2014
Data highlight describing the characteristics of disabled Medicare beneficiaries by end stage renal disease (ESRD) status. Uses data from the Centers for Medicare and Medicaid Services' (CMS) Chronic Conditions Data Warehouse (CCW) and includes a breakdown of metropolitan, micropolitan, or rural residence of disabled Medicare beneficiaries with ESRD.
Author(s): Elsa Haile, Sonya Bowen, Kenneth Lindenfelser, Chris Haffer
Date: 07/2017
Type: Document
Sponsoring organization: Centers for Medicare and Medicaid Services
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Vermont Care Network Advocates for Behavioral Health and Developmental Disability Agencies
Highlights the work of the Vermont Care Network, which supports 16 non-profit agencies that provide behavioral health and developmental disability services in the state. Discusses cross-sector collaboration and integration of mental health, substance use, and developmental disability services with primary care.
Author(s): Jenn Lukens
Citation: Rural Monitor
Date: 03/2017
Type: Document
Sponsoring organization: Rural Health Information Hub
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Disability in Rural America
Examines differences between urban and rural impairment rates and lists impairments as defined by the American Community Survey. Features national maps showing percent of disabled population by tract, 2011-15; quality and access to clinical care by county, 2016; and county-level unemployment relative to national rate, 2016.
Author(s): Erin Barbaro
Date: 02/2017
Type: Document
Sponsoring organization: Community Commons
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Research that Leads to Solutions for Rural Americans with Disabilities
Describes the research efforts of the University of Montana Research & Training Center on Disability in Rural Communities, including a section on Health and Rural Disability. Features a county-level map showing disability rates, and statistics on the disability rate by age group, with breakdowns by rural and urban location.
Additional links: Executive Summary
Date: 2017
Type: Document
Sponsoring organization: Research and Training Center on Disability in Rural Communities
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Neglected for Too Long: Dental Care for People with Intellectual and Developmental Disabilities
Policy brief describing scarcity of dental care for people with intellectual and developmental disabilities, due to a shortage of properly trained dental care providers and exceptionally long distances many patients must travel to receive adequate care.
Date: 2017
Type: Document
Sponsoring organization: National Council on Disability
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Animals Help People Heal in Rural Areas
Discusses the role of service and therapy animals in rural communities. Features service dogs of Hawaii, therapeutic riding horses of Wyoming, and a Florida skilled nursing facility with a therapy pig and tortoise.
Author(s): Allee Mead
Citation: Rural Monitor
Date: 12/2016
Type: Document
Sponsoring organization: Rural Health Information Hub
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Rural Matters: The Geography of Disability in Rural America
Describes the distribution and demographics of people with disabilities living in rural areas and provides information on the services available to them. Includes disability rates by county and rates by metro and nonmetro status.
Author(s): Andrew Myers, Lillie Greiman, Christiane von Reichert, Tom Seekins
Date: 07/2016
Type: Document
Sponsoring organization: Research and Training Center on Disability in Rural Communities
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Developing a Method for Assessing National Demand-Response Transit Level of Service
Results of a study based on survey data from 65 agencies in North Dakota and Florida, to determine appropriate levels of transportation coverage for older adults and people with disabilities in urban and rural areas in the U.S. Includes a mobility needs index identifying areas with the greatest need for services. Also, provides county-level maps of North Dakota and Florida displaying statistics showing existing level of service, frequency and type of service, and minimum advance reservation time. Provides a framework for identifying communities where improvements in service are needed.
Author(s): Ranjit Godavarthy, Jeremy Mattson, Patrick Nichols, Del Peterson, Jill Hough
Date: 10/2015
Type: Document
Sponsoring organization: Upper Great Plains Transportation Institute
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Transportation Update: Where We've Gone and What We've Learned
Update to the 2005 report, The Current State of Transportation for People with Disabilities in the United States. Chapter 7 discusses the gaps and barriers in transit services in rural areas, and identifies funding sources for rural transportation and effective strategies to help the rural population of people with disabilities access healthcare, employment and participate in the community.
Date: 05/2015
Type: Document
Sponsoring organization: National Council on Disability
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Eight Step Advocacy Plan for Deaf and Hard of Hearing Survivors of Sexual Assault
Guide for rural sexual assault advocates, with information on providing appropriate services and identifying accommodations in services and changes in technology.
Author(s): Leah Green, Petty Chicoine, Stephanie Mathis, Jennifer Upah-Kyes
Date: 2015
Type: Document
Sponsoring organization: Resource Sharing Project
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Older Americans With a Disability: 2008-2012
Provides information on adults 65 and over with a disability, based on 2008-2012 American Community Survey data. Includes three national maps showing county-level data for this population.
Author(s): Wan He, Luke J. Larsen
Date: 12/2014
Type: Document
Sponsoring organization: U.S. Census Bureau
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ADA Guide for Rural Demand-Response Transportation Service Providers
A guide to help demand-response transportation service providers serving rural areas understand and apply the federal requirements of the Americans with Disabilities Act of 1990 (ADA) when meeting the transportation needs of people with disabilities. Explains ADA regulations for vehicles, service policies, and etiquette for smaller, rural operators.
Date: 10/2014
Type: Document
Sponsoring organizations: Easter Seals Project ACTION, National Aging and Disability Transportation Center
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The Geography of Disability in America: On Rural-Urban Differences in Impairment Rates
Shows how adult disability rates vary between rural and urban areas in the U.S. Includes statistics on six types of impairment with breakdowns by age group and three levels of county population density.
Author(s): Christiane von Reichert, Lillie Greiman, Andrew Myers,
Date: 08/2014
Type: Document
Sponsoring organization: University of Montana: Rural Institute for Inclusive Communities
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Assessment of Appalachian Region Pediatric Hearing Healthcare Disparities and Delays
Reports on a study to analyze the timeliness of diagnostic and rehabilitative services for children with severe hearing loss in rural areas of Appalachia which may postpone or delay cochlear implantation and other intervention services.
Author(s): Matthew L. Bush, Mariel Osetinsky, Jennifer B. Shinn, et al.
Citation: Laryngoscope, 124(7), 1713-1717
Date: 07/2014
Type: Document
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Rural Self-Management Support
Reports on approaches to support rural Americans with disabilities through teaching self-management skills so that individuals make more positive health behavior choices for improved health status.
Author(s): Craig Ravesloot, Tracy Boehm, Tannis Hargrove
Date: 05/2014
Type: Document
Sponsoring organization: Research and Training Center on Disability in Rural Communities
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State Funded Housing Assistance Programs
Reviews 77 state funded housing assistance programs across rural and urban areas in 34 states that support people with disabilities and mental illness. Includes a description of the Nevada Rural Housing Authority program.
Author(s): Rachel Bergquist, Emily Cooper, Kevin Martone, Melany Mondello
Date: 04/2014
Type: Document
Sponsoring organization: Technical Assistance Collaborative
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Map Facts: Disability in Rural America
Analyzes U.S. Census data from 2008 to 2012 to describe prevalence of impairments leading to disability is significantly higher in nonmetropolitan counties than in metropolitan counties.
Author(s): Tom Seekins, Lillie Greiman
Date: 02/2014
Type: Document
Sponsoring organization: Research and Training Center on Disability in Rural Communities
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Disability and Rehabilitation in Rural America: A Synopsis of the State of the Science, 2012
Summarizes the major points made by the speakers at a 2012 state-of-the-science conference on the status of rural disability and rehabilitation. Includes their recommendations for research and knowledge translation. Section 4 focuses on recommendations related to rural health.
Date: 2012
Type: Document
Sponsoring organization: Research and Training Center on Disability in Rural Communities
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The State of Housing in America in the 21st Century: A Disability Perspective
Provides a comprehensive overview on the state of housing in the 21st century and answers important questions about the current housing needs and options. Includes resources on key health and support services for people living with disabilities in rural and urban areas of the U.S.
Date: 01/2010
Type: Document
Sponsoring organization: National Council on Disability
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Public Health Preparedness and Response for At-Risk Populations: Harnessing the Power of Health Information and Communication Technologies
Describes public health preparedness and response challenges for people with disabilities and other at-risk populations. Covers information and communication technologies used by healthcare providers and consumers. Provides examples of state governments and local communities using technology to reach at-risk populations, includes rural communities.
Author(s): Anne Rader, Margo Edmunds, Joan Bishop
Date: 2010
Type: Document
Sponsoring organization: Booz Allen Hamilton Inc.
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Effective Emergency Management: Making Improvements for Communities and People with Disabilities
Offers information to assist all levels of government to establish evidence-based policies and practices across the life cycle of disasters. Provides examples of effective community efforts with respect to people with disabilities and evaluates emergency preparedness, disaster relief, and homeland security program efforts deployed by public and private sectors in rural and urban locations.
Author(s): Elizabeth Davis, Brenda Phillips
Date: 08/2009
Type: Document
Sponsoring organization: National Council on Disability
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Americans with Disabilities Act (ADA) of 1990 and ADA Amendments Act of 2008
Text of the Americans with Disabilities Act (ADA) of 1990, Public Law 101-336 (July 26, 1990), as amended by Public Law 110–325 (September 25, 2008). Recognizes and protects the civil rights of people with disabilities and is modeled after earlier landmark laws prohibiting discrimination on the basis of race and gender.
Date: 01/2009
Type: Document
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Rural America and the South Have the Highest Percent of Veterans with Service-Related Disabilities
Presents data from the 2008 American Community Survey which shows that a higher number of disabled veterans reside in the South and in rural areas. In general, a higher number of veterans live in these areas and face additional challenges such as gaining access to care.
Author(s): Marybeth J. Mattingly, Michelle L. Stransky
Date: 2009
Type: Document
Sponsoring organization: Carsey School of Public Policy
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State Profile Map Series
Series of state profile maps showing disability rates at the county level, using data from the December 2018 American Community Survey. Maps for each state are planned to be added as they are completed and become available.
Type: Map/Mapping System
Sponsoring organization: Research and Training Center on Disability in Rural Communities
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Rural Disability Resource Library
Online collection of resources for rural people with disabilities.
Type: Website
Sponsoring organization: Research and Training Center on Disability in Rural Communities
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Case Study: Hospital's School-to-Work Program Aids Young Adults with Disabilities
Presents results from a Project SEARCH program, carried out by York General Health Care Services, located in York, Nebraska, and several other local partners. Shares approaches, key steps, and lessons learned from York General's work with community stakeholders to prepare and transition young adults with disabilities into the healthcare workforce.
Type: Document
Sponsoring organization: Bryan Health
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Access to Care for Rural People with Disabilities Toolkit
Resources and best practices to help rural communities improve access to care for people with disabilities. Identifies program models and examples, and discusses implementation, evaluation, sustainability, and dissemination of program results.
Type: Website
Sponsoring organization: Rural Health Information Hub
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PubMed Search: People with Disabilities and Rural Health
Searches PubMed's collection of journal article citations on the topic of people with disabilities and rural health.
Type: Literature Search
Sponsoring organization: U.S. National Library of Medicine
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ADA.gov
Information and technical assistance on the Americans with Disabilities Act (ADA). Web site includes many publications on ADA topics. A toll-free information line is also available:
800.514.0301 (voice)
800.514.0383 (TDD)
Type: Website
Sponsoring organization: U.S. Department of Justice
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Directory of Centers for Independent Living (CILs) and Associations
State-by-state directory of independent living centers and the counties they serve, with address, phone, and email contact information.
Type: Directory
Sponsoring organization: ILRU (Independent Living Research Utilization)
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Additional resources are available related to this guide. See the full list of resources by topic for:


Last Updated: 12/3/2019