Rural Health
Resources by Topic: Research methods and resources
Evaluating Adaptation of a Cancer Clinical Trials Decision Aid for Rural Cancer Patients: A Mixed Methods Approach
Study examining clinical trial methods for rural cancer patients. Surveys 15 cancer survivors and 31 recently diagnosed patients in two phases to evaluate patient decision aids (DA), which are designed to improve patient knowledge and preparedness so they can make informed decisions about whether or not to participate in a trial. Compares data from rural and urban participants and discusses concerns specific to rural cancer trial participants, including confidence in the healthcare system, willingness to undertake the effort to participate, and access to web-based tools required for participation, among others.
Author(s): Swati Pathak, Nerissa George, Denise Monti, et al.
Citation: Journal of Cancer Education, 34, 803-809
Date: 08/2019
Type: Document
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Study examining clinical trial methods for rural cancer patients. Surveys 15 cancer survivors and 31 recently diagnosed patients in two phases to evaluate patient decision aids (DA), which are designed to improve patient knowledge and preparedness so they can make informed decisions about whether or not to participate in a trial. Compares data from rural and urban participants and discusses concerns specific to rural cancer trial participants, including confidence in the healthcare system, willingness to undertake the effort to participate, and access to web-based tools required for participation, among others.
Author(s): Swati Pathak, Nerissa George, Denise Monti, et al.
Citation: Journal of Cancer Education, 34, 803-809
Date: 08/2019
Type: Document
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Dissemination of Rural Health Research: A Toolkit
Offers health services researchers a variety of approaches and products to help communicate research findings to their target audience. Provides general guidelines, as well as advice related to specific product types, such as fact sheets and policy briefs, and to particular methods of communication, including social media.
Date: 08/2019
Type: Document
Sponsoring organization: Rural Health Research Gateway
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Offers health services researchers a variety of approaches and products to help communicate research findings to their target audience. Provides general guidelines, as well as advice related to specific product types, such as fact sheets and policy briefs, and to particular methods of communication, including social media.
Date: 08/2019
Type: Document
Sponsoring organization: Rural Health Research Gateway
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Understanding Symptom Burden in Patients with Advanced Cancer Living in Rural Areas
Explores research methods for understanding differences in rural and urban cancer care, treatment, and symptom-based stressors. Discusses challenges in recruiting and retaining rural study participants and capturing differences between rural patients receiving local care and those receiving care in metro areas. Studies the severity of advanced cancer symptoms for 21 rural patients in Iowa, drawing data from patient surveys. Describes disparities in advanced cancer diagnosis and differences in treatment experiences.
Author(s): Stephanie Gilbertson-White, Yelena Perkhounkova, Seyedehtanaz Saeidzadeh, et al.
Citation: Oncology Nursing Forum, 46(4), 428-441
Date: 07/2019
Type: Document
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Explores research methods for understanding differences in rural and urban cancer care, treatment, and symptom-based stressors. Discusses challenges in recruiting and retaining rural study participants and capturing differences between rural patients receiving local care and those receiving care in metro areas. Studies the severity of advanced cancer symptoms for 21 rural patients in Iowa, drawing data from patient surveys. Describes disparities in advanced cancer diagnosis and differences in treatment experiences.
Author(s): Stephanie Gilbertson-White, Yelena Perkhounkova, Seyedehtanaz Saeidzadeh, et al.
Citation: Oncology Nursing Forum, 46(4), 428-441
Date: 07/2019
Type: Document
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Trends in Clinical Research Including Asian American, Native Hawaiian, and Pacific Islander Participants Funded by the US National Institute of Health, 1992 to 2018
Study in which data from the National Institutes of Health (NIH) system was used to find NIH-funded research focused on Asian American, Native Hawaiian, and Pacific Islander populations. Features statistics including dollar amounts allocated to research, and funding amounts provided to various projects and organizations, with breakdowns by select states plus the District of Columbia and Guam.
Author(s): Lan N. Doan, Yumie Takata, Kari-Lyn K. Sakuma
Citation: JAMA Network Open 2(7)
Date: 07/2019
Type: Document
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Study in which data from the National Institutes of Health (NIH) system was used to find NIH-funded research focused on Asian American, Native Hawaiian, and Pacific Islander populations. Features statistics including dollar amounts allocated to research, and funding amounts provided to various projects and organizations, with breakdowns by select states plus the District of Columbia and Guam.
Author(s): Lan N. Doan, Yumie Takata, Kari-Lyn K. Sakuma
Citation: JAMA Network Open 2(7)
Date: 07/2019
Type: Document
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The Rural-ness of Social Isolation: Information from Recent Public Health Research
Dr. Carrie Henning-Smith, deputy director of the University of Minnesota Rural Health Research Center, explains how social isolation and loneliness impact rural Americans, based on information from her team's recent studies.
Author(s): Kay Miller Temple
Citation: Rural Monitor
Date: 07/2019
Type: Document
Sponsoring organization: Rural Health Information Hub
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Dr. Carrie Henning-Smith, deputy director of the University of Minnesota Rural Health Research Center, explains how social isolation and loneliness impact rural Americans, based on information from her team's recent studies.
Author(s): Kay Miller Temple
Citation: Rural Monitor
Date: 07/2019
Type: Document
Sponsoring organization: Rural Health Information Hub
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Understanding and Using American Community Survey Data: What Users of Data for Rural Areas Need to Know
An overview of what data users need to know about working with American Community Survey (ACS) data for rural areas. Addresses how rural is defined, the use of 5-year estimates, strategies to produce reliable estimates for rural communities, where to access rural ACS estimates, and case studies of rural data use.
Date: 06/2019
Type: Document
Sponsoring organization: U.S. Census Bureau
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An overview of what data users need to know about working with American Community Survey (ACS) data for rural areas. Addresses how rural is defined, the use of 5-year estimates, strategies to produce reliable estimates for rural communities, where to access rural ACS estimates, and case studies of rural data use.
Date: 06/2019
Type: Document
Sponsoring organization: U.S. Census Bureau
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2020 Census Predictive Models and Audience Segmentation Report: A New Design for the 21st Century
Reports on how different segments of the population are likely to self-respond to the 2020 Census. Identifies eight audience segments, groupings of census tracts with similar predicted self-response behavior and similar demographics related to self-response. Includes a map showing how they are geographically distributed. Two of the segments, Country Roads and Sparse Spaces, are rural. Others include rural areas. For each audience segment, information is provided on demographics, media consumption, and mindset related to the census.
Additional links: 2020 Census Audience Segment Descriptions
Author(s): Robert Kulzick, Laura Kail, Shawnna Mullenax, et al.
Date: 06/2019
Type: Document
Sponsoring organization: U.S. Census Bureau
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Reports on how different segments of the population are likely to self-respond to the 2020 Census. Identifies eight audience segments, groupings of census tracts with similar predicted self-response behavior and similar demographics related to self-response. Includes a map showing how they are geographically distributed. Two of the segments, Country Roads and Sparse Spaces, are rural. Others include rural areas. For each audience segment, information is provided on demographics, media consumption, and mindset related to the census.
Additional links: 2020 Census Audience Segment Descriptions
Author(s): Robert Kulzick, Laura Kail, Shawnna Mullenax, et al.
Date: 06/2019
Type: Document
Sponsoring organization: U.S. Census Bureau
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Measuring Access to Care in National Surveys: Implications for Rural Health
Policy position brief reviewing access measures used in major national surveys and discussing implications for rural research on access to care. Features tables showing surveys, populations studied, and geographic measures; example survey questions for each access domain; and access to care measures in nationally-representative surveys.
Author(s): Carrie Henning-Smith, Ashley M. Hernandez, Hannah Neprash, Megan Lahr
Date: 06/2019
Type: Document
Sponsoring organization: University of Minnesota Rural Health Research Center
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Policy position brief reviewing access measures used in major national surveys and discussing implications for rural research on access to care. Features tables showing surveys, populations studied, and geographic measures; example survey questions for each access domain; and access to care measures in nationally-representative surveys.
Author(s): Carrie Henning-Smith, Ashley M. Hernandez, Hannah Neprash, Megan Lahr
Date: 06/2019
Type: Document
Sponsoring organization: University of Minnesota Rural Health Research Center
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Reducing Cancer Among Native Populations: Models for Research, Prevention, and Treatment
Highlights the work of a cancer researcher, a foundation director, and healthcare provider who are engaging American Indians and Alaska Natives in cancer research, prevention, and treatment.
Author(s): Jenn Lukens
Citation: Rural Monitor
Date: 05/2019
Type: Document
Sponsoring organization: Rural Health Information Hub
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Highlights the work of a cancer researcher, a foundation director, and healthcare provider who are engaging American Indians and Alaska Natives in cancer research, prevention, and treatment.
Author(s): Jenn Lukens
Citation: Rural Monitor
Date: 05/2019
Type: Document
Sponsoring organization: Rural Health Information Hub
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The Health Equity Implementation Framework: Proposal and Preliminary Study of Hepatitis C Virus Treatment
Describes an implementation framework used to evaluate barriers to hepatitis C virus (HCV) treatment for elderly, rural, Black, U.S. Department of Veterans Affairs (VA) patients in the South. Identifies barriers and facilitators for HCV treatment. Discusses how the Health Equity Implementation Framework can be used to help research and address health disparities.
Author(s): Eva N. Woodward, Monica M. Matthieu, Uchenna S. Uchendu, Shari Rogal, JoAnn E. Kirchner
Citation: Implementation Science, 14(1), 26
Date: 03/2019
Type: Document
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Describes an implementation framework used to evaluate barriers to hepatitis C virus (HCV) treatment for elderly, rural, Black, U.S. Department of Veterans Affairs (VA) patients in the South. Identifies barriers and facilitators for HCV treatment. Discusses how the Health Equity Implementation Framework can be used to help research and address health disparities.
Author(s): Eva N. Woodward, Monica M. Matthieu, Uchenna S. Uchendu, Shari Rogal, JoAnn E. Kirchner
Citation: Implementation Science, 14(1), 26
Date: 03/2019
Type: Document
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