Validated Data Collection Tools for COPD Programs
COPD programs may need to collect different types of data in order to effectively evaluate program efforts. The
program may be able to use existing data from a variety of sources, including electronic medical records. The Finding Statistics and Data Related to Rural Health topic guide
provides information on finding data sources relevant to local programs.
If new data must be collected, there are several validated data collection tools available, including but not
limited to the following:
The BODE Index for COPD
Survival (BODE Index) – The BODE Index is used to predict survival in COPD patients and should
not be used for determining therapy options. It incorporates body mass index (BMI) and a six-minute walk
test, so it should not be used during an acute exacerbation. The BODE Index is also a good predictor of
hospitalizations related to COPD.
The COPD Assessment Test (CAT) – The CAT is an eight-question,
patient-completed questionnaire used to assess the impact of COPD on quality of life. The questionnaire
evaluates cough, sputum, breathlessness, chest
tightness, confidence, activity, sleep, and energy level to help the patient's healthcare provider determine
appropriate treatment strategies. The CAT is recommended by the Global
Initiative for Chronic Obstructive Lung Disease (GOLD) treatment guidelines.
The Clinical COPD Questionnaire (CCQ) – The
CCQ is a 10-item questionnaire used to assess COPD symptoms.
Criteria for COPD – The GOLD Criteria is used to determine the severity of COPD. The GOLD
Criteria act as a framework that can prompt disease management or risk reduction efforts; the score can be
linked to recommendations for treatment.
Medical Research Council (mMRC) Dyspnea Scale – The mMRC is used in patients with respiratory
diseases and dyspnea (shortness of breath) to assess their baseline lung functioning. The mMRC is
recommended by GOLD.
The Patient Health Questionnaire
(PHQ-9) – The PHQ-9 is a self-administered questionnaire used to assess the severity of depression, a common
comorbidity with COPD.
The Patient Activation
Measure (PAM) – The PAM survey is used to assess patient knowledge, skill, and confidence for
self-management of COPD.
Resources to Learn More
Research and Evaluation Tools
Provides a variety of helpful tools and resources to use when developing an evaluation plan for chronic disease
Organization(s): Self-Management Resource Center