Data Sharing and Equitable Ownership of Data
Access to valid and reliable data is essential for rural communities planning and implementing health equity
programs. Rural communities need access to data to identify health inequities and to plan and prioritize program
activities. However, many communities experience challenges accessing data, which creates barriers to informed
decision-making at all levels. In addition, smaller populations and lower population densities can complicate
data collection and reporting in rural communities.
Many rural communities are making improved data collection and sharing a priority. The Center of Rural and
Primary Healthcare at the University of South Carolina launched the SC
Rural Healthcare Resource Dashboard to provide communities in their state with access to reliable
cross-sector data so that they may plan and implement programs with confidence.
Data ownership is also a critical issue for many communities, especially those who have experienced historic
coercion or harm from participating in research. Many tribal communities emphasize the importance of indigenous
data sovereignty, which asserts the rights of tribal
nations to oversee how their data is collected, owned, and used. The framework calls for the reclamation of
tribal data to best serve the interests and aspirations of indigenous and tribal nations and promote Native
Resources to Learn More
the Dots: A Data Sharing Framework for the Local Public Health System
Describes requirements for and opportunities to share data between local health departments and other community
Organization(s): National Association of County and City Health Officials (NACCHO)
Discusses actionable solutions to the “bad” data crisis and the need for open and shared data.
Author(s): Daly, A., Devitt, S. K., Mann, M., et al.
Organization(s): Institute of Network Cultures
Health Equity is
of New Data Sharing Initiative
Highlights the Data Across Sectors for Health (DASH) initiative and presents strategies from grantees currently
receiving funding to improve data sharing capabilities.
Organization(s): Center for Health Care Strategies
Indigenous Data Governance: Strategies
from United States Native Nations
Describes indigenous data sovereignty and its relationship to indigenous data governance (IDG). Discusses the
role of IDG in equitable data collection and analysis by and for tribal nations. Offers case studies and
recommendations supporting Native nations' control of their data.
Author(s): Carrol, S. R., Rodriguez-Lonebear, D., & Martinez, A.
Citation: Data Science Journal, 18(1), 31
of “Good” Rural Data
Provides information about the importance of rural data, the current state of rural data, and strategies to
strengthen rural data sources and recommendations for rural data users.
Author(s): Scally, P. C., Burnstein, E., & Gerken, M.
Organization(s): The Urban Institute